June 2009
G'day Harker
I started off with Mirrors when the kids were little. I haven't sailed out of Beaumaris. It was enough to visit several repair shops on a Monday morning after a blowiy weekend and see the chuck taken out of centreboards on the reef. Cerberus is still there but a somewhat diminished sight now.
Mirrors were fun little boats and incredibly safe. It is a pity that so few of them seemed to be sailed these days. I can remember sailing off Mordialloc in one set of titles when a forty knot front came through. Very few of them went over, people just put them on a reach, let out the main and headed for Frankston.
Class Logo - that would identify me.
Cheers
Sailor
... View more
June 2009
Dorovitch forgot!
How dare they!
Don't they realise
The importance?
Telephone calls,
Explanations,
"We'll send them today" -
No apology!
Tomorrow is specialist day.
To know is to be prepared,
Not surprised.
And their response was,
"Get them from your doctor"
Your GP.
GP means money,
More than specialists charge.
No reason to see GP -
Even if he is good,
And looked after children
When critical and growing.
Don't they realise
The importance?
Of results - when it
Is not going away.
Sailor
Time and tide will wait for no man, saith the adage. But all men have to wait for time and tide. Charles Dickens
... View more
June 2009
Sitting and waiting.
It has been a longtime,
Since I wrote,
Like this.
The last time, I sat
By the old river Thames,
Tate Modern
03.
I was not waiting then.
For mail from pathologists,
Late, late mail with
Results.
Will it be the Footman,
Eternal snickering again
As he holds my coat?
I wait.
Or will it be the same -
So I can catch the wind,
Trim sail and remain,
Sane?
Sailor
I am no prophet - and here's no great matter
I have seen the moments of my greatness flicker,
I have seen the eternal footman hold my coat, and snicker,
And in short, I was afraid
T S Eliot "The love song of J Alfred Prufrock"
... View more
May 2009
Hi Everyone
Sailor hasn't had much chance to go sailing. Been far to busy and haven't had time to process some of the experiences. Had bloods taken today so will know in a few days just how I am progressing. Then I start the round of seeing various specialists again.
Was feeling a bit down last week, then got a real kick in the teeth when I got home after a very exhausting weekend to find a friend of mine had been diagnosed with renal cancer. The only symptom was one that I have regularly. Hey, one cancer's enough!
Next week should be a bit less busy, sure hope it is.
Cheers
Sailor
Give me a spirit that on this life's rough sea
Loves t'have his sails filled with a lusty wind,
Even till his sail-yards tremble, his masts crack,
And his rapt ship run on her side so low
That she drinks water, and her keel plows air.
George Chapman
... View more
May 2009
Hi Johansen Family
That is really great news. You all deserve this as a family you have supported Josh through a really awful time. Look forward to the news that the tumour has shrunk even further.
cheers
Sailor
The days pass happily with me wherever my ship sails. Joshua Slocum
... View more
May 2009
Hi Julieg
When I was first diagnosed an elderly friend who had been a senior nurse in a major hospital came up to me, gave me a hug and told me that I had a prefect right to be angry. I didn't need to be then, but just being given permission to be angry made a lot of difference. A few months later I went to the end of year dinner that a group of friends that was a regular event. We were a pretty crazy group who didn't spare any feelings - we had all been mature age students together. One of the female members came up gave me a big hug and asked 'how are all your dangly bits' - she gave me permission to talk about the side effects of treatment. I told another friend about the perils of being irradiated with a full bladder when the machine broke down! The blighter circulated the email to all our mutual friends, but he gave me permission to joke about things that were pretty personal.
So I was fortunate that I was given permission to be angry, to talk about personal matters, to use humour to deal with issues. Others gave me permission to cry and at times to lament. Recently one of my friends when he heard the news of my twin grandchildren arriving came up to me and said quietly " we have at times wept with you and now we rejoice with you".
So don't be afraid to weep, to be angry, to lament, but also don't be afraid to laugh about the ridiculous things you will encounter, to talk with anybody about matters and to rejoice at the joys of life. It is now very precious.
Regards
Sailor
I think the sea has thrown itself upon me and been answered, at least in part, and I believe I am a little changed - not essentially, but changed and transubstantiated as anyone is who has asked a question and been answered. Hart Crane
... View more
May 2009
Hi Julieg
Yes it is devastating. Don't be afraid to cry, and when you have finished crying you are allowed to cry some more. Your husband and girls are allowed to cry as well. It is really good that you have arranged some counselling, too many of us take that step far too late. Also remember that you are an individual, you have an aggressive difficult to treat cancer, but all the information on that cancer is based on groups of people and averages and statistics. That doesn't say that that will be your journey. There is a great story by the writer Stephen J Gould about his personal diagnosis of mesothelioma of the stomach nearly thirty years ago. That is a rare and aggressive cancer with a median life expectancy of eight months. He lived for twenty years. It is called, 'The median is not the Message' and can be accessed from the internet at http://www.phoenix5.org/articles/GouldMessage.html.
Good luck with the visit to the oncologist, the GP and the journey ahead.
Best wishes
Sailor
“Thought is the wind, knowledge the sail, and mankind the vessel.”
August Hare
... View more
May 2009
Hi dunedigger
It is great news about Avastin, Herceptin and Sutent. What is not good news is that Cabinet has sat on this decision for Avastin for at least twelve months.
What is really bad news is that the government proposes that after July 1 they will only fund through the PBS the amount of drug used not the number of vials. So if you need 120mg of a drug and it comes in 50 mg vials, they will only pay for the 120mg. The other 30 mg, you will end up paying for as on safety reasons the drug cannot be used for another patient. (If anyone wants details of the safety reasons and the technology for the safe handling of cytotoxic drugs I can supply!) It is a case of bean counters running wild!!
Don;t be afraid to contact your local MP over this one, there is a huge campaign starting up.
Cheers
Sailor
There are no signposts in the sea. Vita Sackville-West
... View more
May 2009
Hi to all those out there.
For the first time for quite a while the boat got wet today!
Unfortunately there was not much wind. At the start of the race there was a bit of wind and it was good to feel the boat responding, to hear the noise of water under the bows and the sails responding well. Then the wind dropped out and it became a real drifter. In a drifter I can sail well but you have to keep very still, crouched up in the front of the boat and watching the sails and the wind markers intently, every slight puff of wind you have to trim the sail, head up as high as you can go and work the boat constantly, using as little rudder as possible. well after an hour of this and having completed the first triangle of the course, my hips were protesting loudly, my legs were screaming with not having moved, and the intense concentration was getting a bit too much, so I bailed out while I was still enjoying it. Got to shore, packed up the boat and watched for another hour until the committee boat put up the shorten course flag. That meant that most boats would be out there for 2 1/2 - 3 hours. Bit too much for me these days.
Who else finds that living with cancer means you get tired a lot sooner?
So it is time to sit down with a good single malt and watch The Bill
Cheers
Sailor
Boats, like whiskey, are all good. R. D. Culler
... View more
April 2009
Hi Everybody
It is great to be part of this site and a privilege to take part in some of the discussions.
Some of the entries have raised that 'What if' question so I would like to adjust my sail a little bit and add my perspective.
A long long time ago my eldest son died. We were pretty distraught by that. Many years later we found out that there was a genetic issue in the family that the older generation didn't talk about. The younger generation do and make sure that they have all the tests available. So there area lot of 'what if's' there.
My youngest son has had a pretty troubled existence and has a problem that has only recently been properly diagnosed. If there had been a diagnosis, and goodness knows we tried to get one, when he had been at school and there had been intervention then - who knows?
I have a cancer that has a strong family link, yet no one in the family has had that cancer. There is another cancer that runs through the family and I have been monitored for that for the past twenty years. So is my cancer the result of something else, like a chemical exposure. Lots of 'what if's' there.
The problem is that if we went down these pathways we could end up becoming quite bitter and twisted people. I have seen it happen with others. So we have always taken the attitude that going down the path of the 'what if's' is not worth it - that way lies madness.
Does that say we stoically accept what has happened. No way. We work with what we have been given, try to make the best outcome from that. We try to ensure that we keep the boat of life, well trimmed, sailing to it's best, and performing as well as it can under the conditions. If a roque wave swamps us, we bail. If we get a knock from the wind that sets us back, we retrim the sails and try to make up the distance. We keep going.
So, I've adjusted my sail and that's my contribution.
Cheers
Sailor
I keep sailing on in this middle passage. I am sailing into the wind and the dark. But I am doing my best to keep my boat steady and my sails full. Arthur Ashe
... View more