I recognise the description of your husband's reactions as similar to mine. That was four years ago. If it is the first course he has had it is likely he will continue to feel wiped out for some time yet. It does get better, maybe into the second or third course (that's not science, just me recollecting). The fatigue is quite extraordinary. That's what it is like. H ... View more

Thanks. The best thing in life is standing in the back garden holding a freshly laid egg and feeling the sun on my face. What else is there? ... View more

I am about to start medication again after more than three years of remission. I am fine, thanks. I don't think about it much, only all the time, and I am busy with things I want to do. New rounds of treatment just makes the things I choose even more important. I can't control the cancer so I am not going to waste energy on it. I am happy with life. H ... View more

It sounds like you are on the right track. There are lots of good things to read and there are workshops on surviving. I benefited from a workshop that CCV ran on surviving. Gave me a real boost. H ... View more

i can't take neurofen because it eats my kidneys, so i get to go straight to morphine! ... View more

Oxynorm, 20mg if possible. Way to go. ... View more

Welcome to the remission society. You will be living here for the rest of your life. What is happening to you is not about cells in your body. It is about your identity. You said 'I used to think...I will go back to where I stopped and now what?'. No one else can answer that. They're not interested. Only you can. It is not about illness, or medication, or caring. It is now about who you are. I face the same things every day too. H ... View more

That has happened to me several times. It's a shame. I know how you feel. Sometimes I have taken a deep breath and composed the text again, other times I have said 'hang it' and closed down. It's like investing...only risk what you can afford to lose! I use Word for things that I intend to compose with care (that can take weeks) and then it is a simple matter of cutting and pasting into the comment box, checking the formatting - only takes a minute - and them posting. I don't know if the site can retrieve your text. Maybe ask? They are really helpful and I know they have found things in cyberspace for others. H ... View more

WOLF BITES SHARK: SHOCK CLAIMS ... View more

Thanks Ben. You are a scientist and I am not. I had febrile reactions to my cancer drug which put me in emergency twice and the consensus is that Dex is necessary to combat them (that would come under convulsions on your list). But as you say, no-one knows how. I am looking forward to shark fin shaped ninja star knives flying around the bedroom. They go ppfffffhhht, pppffffhhhttt. Well that's what they sounded like in the mid 60s on a black and white television. H ... View more