About willow

willow

Hi Jill I have not had a headache for a few days now - the relief is amazing. I can think more clearly and do more too. I am still having physio on my back but some days that is better too. I went back to work on Monday - just for four hours - Monday, Wednesday and Friday this week and next week too with the plan to gradually increase days and hours. Don't know how I feel right now but I have to try going back to the old life as it is the only way I will know if it is what I want. For now it is a day at a time..... Thanks for your msg. I hope all is going ok for you and your family. Take care, Willow

willow

Hi Versaillon Thanks. I do need to exercise more - I need to motivate myself to just get out there and walk and hopefully soon start up with pilates again. Sleep is a definetely a good medicine too. I went to my local Dr - she is nice but doesn't really have much advice - she wants me to have a full blood test and prescribed a tablet much like nurofen. I don't really have much faith in Dr's and their ability to medicate correctly. I told her I needed something for the headache and she said to continue with panadeine forte. Oh well. Good news about your husband - I hope things continue to improve for you both. Kind regards, Willow

willow

Hi Vanessa Thanks for your reply. You said it has been three years since you finished treatment yet you still get the side affects? I get pain and tingling in my fingers and even in my feet. I have wondered if this is the side affects of the chemo? Internal radiation doesn't sound good. I am hoping once I get stronger to go back to pilates. I am attending a physio at the moment for my back pain and will wait till she tells me it is ok to start exercising again. I have never been very good in water and cannot swim. I am still waiting for my energy levels to return to normal as I get very tired quickly. Take care Willow

willow

Hi Vanessa Thanks for your reply. You said it has been three years since you finished treatment yet you still get the side affects? I get pain and tingling in my fingers and even in my feet. I have wondered if this is the side affects of the chemo? Internal radiation doesn't sound good. I am hoping once I get stronger to go back to pilates. I am attending a physio at the moment for my back pain and will wait till she tells me it is ok to start exercising again. I have never been very good in water and cannot swim. I am still waiting for my energy levels to return to normal as I get very tired quickly. Take care Willow

willow

Hi Vanessa Thanks for your reply. You said it has been three years since you finished treatment yet you still get the side affects? I get pain and tingling in my fingers and even in my feet. I have wondered if this is the side affects of the chemo? Internal radiation doesn't sound good. I am hoping once I get stronger to go back to pilates. I am attending a physio at the moment for my back pain and will wait till she tells me it is ok to start exercising again. I have never been very good in water and cannot swim. I am still waiting for my energy levels to return to normal as I get very tired quickly. Take care Willow

willow

Hi Jo Thanks for your msg. I have heard about the codeine withdrawal and have wondered about that myself. But what do you do? I have taken Nurofen plus but they don't work. I have still not decided on the MRI. Will discuss it further with my local Dr. It is good to hear that you too have meltdowns and it does actually seem to release a lot of pent up emotion so temorarily you do feel better afterwards. But very embarrassed and silly too. I had a better sleep last night so am feeling a bit more positive today. I just have to do what I can to make each day a good one. Hope all is going well for you and your husband. Kind regards, Willow

willow

Hi Julie Thanks - I feel like a whinge when I see what people like yourself have been through. I do find it difficult to cope with my feelings a lot these days - a lot of it is probably post treatment blues. Chronic pain has a very negative affect on the mood and after dealing with this headache for so long and having the bad night last night was just too much for me. I have had a few what I call 'meltdowns' recently where I just feel as if I am losing the plot and tears flow quite regularly. I need to find the strength to face all this and start to focus on some positive things. It is just very hard. I take comfort from the support of people like you and find this site particulary helpful as I see that there are people who understand my feelings and don't expect too much of me. And there are people who have been through so much more than me and who remain positive and strong. Take care, Kind regards, Willow.

willow

Hi Sharon I hear what you are saying - as before you make a lot of sense. You have been through so much yourself. You seem to have such a good attitude. I could use some of your strength. I have already been told by my oncologist that if the cancer comes back there is nothing they can do - there is no more treatment I can have. And he was quite blunt in saying that I would have only months. This is why my decision is being clouded by fear. I,as do we all, have so much I want to do, to live for. I am supposed to be going back to work next week. I have had talks with the back to work coordinator and she has worked out a program for me. I don't really know if I am ready or even if I want to go back now. I am scared too that if I go back to try and live a normal life it will be taken from me again. Not very rational but something I think about. I am feeling a bit better tonight and hopefully will get a better sleep. Thanks again for your reply. Take care, Kind regards, Willow

willow

Thanks Vanessa You're right I do think that every pain could be cancer. It just seems strange that I have had these headaches every day for a month. And there is no reason I can think that I would have back pain as i have not had an injury. I finished chemo in August and radiation on Nov 2nd. I am feeling a bit better tonight and am hoping I will get a good nights sleep. I am going to see my doctor tomorrow and will try to think more positively. Again thank you for your reply - I hope all is good with you. Regards Willow

willow

Hi I have had a headache now since the 23rd October - sometimes it is not there for some of the day but most nights I wake with it and lie and worry. Last night it was really bad and I couldn't sleep at all. Today I have not been able to do anything except lie on the couch. It is 4pm and the painkillers seem to have finally worked. If things follow the usual pattern this relief will be short lived. I was going to call and make an appointment with the oncologist and ask him to book me in for an MRI (our last conversation was that this is all they can do at this stage). I am feeling so lost and worried and miserable right now. My thoughts are jumping ahead to what I can't even verbalise. I want Christmas to be happy - I want to think of next year with a smile. Maybe if I had a test it would be fine but I know I cannot deal with it if the results are what I fear. My daughter and son have said just have it. Easy to say but not so easy for me to do. I am feeling right now of just curling into a ball and disappearing. A cop out I know but I am saying it as I feel. I keep hoping tomorrow the headache will be gone and I won't have to deal with it - but this is now obviously not going to happen. I finished radiation on the 2nd November and was hoping by now to be feeing heaps better. Not feeling like this. I am also trying to cope with ongoing back pain which has also been there for some weeks (with a recent trip to hospital for pain relief after my back went into a spasm) Physio is helping but progress is slow. I know the decision is mine to make in regard to the MRI but I just wanted to put out there how I am feeling. I don't think my family can really understand how this is affecting me right now. Decision making has never been one of my strong points. Maybe I will go and make an appointment with my local Doctor and ask her advice. I just wish all this would go away........I've really had enough. Willow

Re: A little bit lost........

Re: A little bit lost........

Re: A little bit lost........

Re: A little bit lost........

Re: A little bit lost........

Re: A little bit lost........

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A little bit lost........

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