About M-Nyby

M-Nyby

I suppose I fall into this category of medical trouble. Treated for Non-Hodgkin's Lymphoma and then a relapse and now it seems the cancer has caused a swelling of a membrane around my brain. Only way we knew, though, was because of comparing MRI results. I don't recall any special symptoms that had me worried about the problem. Could be the moving of the cancer to that membrane was related to the relapse and not the first stages of trouble, because one MRI after the initial chemotherapy course seemed to show that all was okay. I'm now on an inpatient course of chemotherapy and it could be this is going to work. Seems to me that one lesson from this is some sort of program of MRIs to be able to spot trouble, like my case. But for what sorts of cancers that works, I don't know. I don't know if anyone has any questions, but I don't mind answering any, within limits. Seems a polite thing to do here is to participate.

M-Nyby

As for temperature problems, that requires a log of sorts to be sure that you've got a problem. A one-time spike isn't a problem, but if it stays high for more than 48 hours or so, then I'd suggest a consultation with a medical professional. If that "consultation" can be safely accomplished in an other than face-to-face consultation is an area I wouldn't be too familiar with. As for infection, that is definitely an area your doctor should be watching out for. Maybe I should write that as already watching out for. There are medications that can be used to fight infection. During my relapse last year I had a nasty infection and we had ourselves a mighty nasty battle to get that under control, but was successful. So no reason to panic, but certainly the doctor needs to be asked about that one. NOW, this thread is over a year old, so I don't know if this is even useful as a post, but I have the time, so I am posting. And this is a place where people might just go to find information and so the thread being over a year old as of my post isn't such a big issue. Just want site management to know I am aware that it is an older thread.

M-Nyby

Just wondering how many members have questions related to this trouble. Presently, I don't have any outstanding questions, but as I have been dealing with this since 2017 I thought there may be some folks that would like to ask questions. But an interesting point here is that I am NOT in Australia. I live in Japan. I actually thought the software here would block my trying to register because of my IP address, but the registration worked, obviously. Still, cancer has no national borders, so maybe I can offer advice based upon my own experience, and I might very well have questions of others at some future date. A rough summary for me is an initial course of chemotherapy; about six months of maintenance chemotherapy which was interrupted by the Covid-19 trouble, which I didn't catch; a second course of inpatient chemotherapy due to a relapse; and now an outpatient course of chemotherapy due to the cancer moving into a membrane around my brain, and the membrane was swelling, but seems to now be under a sort of control. I've got about another six months of this outpatient course to go. Seems my system is pretty stout, so I haven't had so much trouble with all this. Bit on the aged side, I suppose should be stated --- late sixties. Very late sixties, to be more honest. I'm not much liked by the staff at the hospital because I keep spotting errors by their staff and am not quiet about such errors. I also don't think nursing staff are given enough respect by doctors here, but am not sure if that is a cultural matter, or common in other nations. I'm not even sure if site management allows us to discuss that here. As can be easily seen by this post I am not exactly a docile-type patient. I suppose that's enough for now. Well, one more thing --- I think a comparison of notes about differences in approach to medical problems related to this type of cancer treatment --- differences between Japan and Australia, could be very enlightening for certain individuals who may have some interest in that aspect of this field of medicine. I would think a forum like this could be educational for medical professionals as well as patients.

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