Sorry to hear of your not pleasant treatment.   So far i havent had to many issues with poor treatment mainly lack of information is what frustrates me the most. I have my standard treatment tomorrow which i want to talk to doctor about some results from last weeks unscheduled hospital visit, and i feel off. Im not in any pain but i feel not right inside, jabbing aches and pains but then they go something feels like its happening inside but nothing bad enough to worry to much about or at least i hope not. ... View more

Hi Liz,   Hope you are recovering well, mine is still inside me and its my left kidney, they are trying to reduce its size before removing it (or i think thats the plan) last scan showed it had reduced in overall size by 5cm but has a long way to go. I was back in Hospital early Sunday morning with chest pains and had all the necessary scans and tests but they didnt find anything major. The one CT scan has shown a lesion on my left lung but i need to talk with my oncologist at Tuesday appt and find out whether its new or an existing one, the hosp couldnt confirm this so will be interesting to see what oncologist says. Hopefully you have managed to catch yours in time and it wont affect other areas of your body, fingers crossed for you 🙂   ... View more

Sorry to hear of your diagnosis, hopefully you are able to get some more insightful answers to give you a lot more idea of whats ahead.   This is my main frustration being told i have stage 4 and im terminal but they will do their best (which i absolutely appreciate) but its the unknown and no definitive prognosis that frustrates me. I to am on 10mg of Lenvima after the 20mg knocked me round something chronic, mainly pain in my mouth eating and brushing teeth, was terrible.   I have treatment this coming Tuesday at Redlands and just glad i no longer have to travel into the PA for it as its so smooth and 1 minute from home.     ... View more