I wanted to wish everyone a good day today, I hope everyone on the thread here is having the best day possible and spending time with friends and family. 😊🙏 ... View more

I am sorry to hear of your challenges with SIRT. I spoke to a liver who specializes in Liver cancer, and he told me about the procedure, but my main Oncologist wanted me to start with chemotherapy and Immunotherapy infusions first. I started Aug 20th and have had 6 total infusions, twice a month with two weeks off. I just had my follow up MRI to see what it has done to my 6.8 cm tumor. The base line scan before my first infusions showed it had grown 8 mm in 3 months. The scan last week showed NO significant change which my Oncologist said was good news because there was no new growth. He explained how the chemotherapy and immunotherapy work together. I was relieved to hear this was good news and all the side effects were work it. So far, most the side effects are manageable and mild, I have maybe 4 days a month that are the worst and that is usually the same days every month, so I know they are coming and I'm more prepared for them. I hope your body heals from this procedure and your able to manage basic needs better soon. Sending you healing thoughts and prayers!!🙏 ... View more

Hi Cindi and thank you for your kind words! Yes, chemo can shrink my tumor, but its location will always make it inoperable. ICC has a funny way of coming back and yes, I can keep using chemo for the rest of my life to reshrink after each time it comes back, I am just not sure I want a life with constant chemo. With that being said, I still believe in radical remission and have read about cases like mine that have lived over 40 years, so I haven't given up. I also believe in miracles I am 61 and still have a lot of life in me. God bless! ... View more

Hi this is my first time posting. I was diagnosed this July with ICC, Intrahepatic Cholangiocarcinoma. It is Liver cancer of the biliary system my only tumor is 7cm and inoperable due to the fact that it's near all the major vessels in the liver 😲. Theu accidentally found it when I had CT for a UTI. I am a retired Ultrasound Tech of 30 years. I imaged thousands of cancerous tumors in patient's bodies, performed liver, kidney biopsies. I am still in shock that I developed cancer after retirement. It's probably a good thing I live alone because chemo is complex and taxing. Prayer and edibles are my go to. The hardest thing for me is have just enough medical knowledge to read all my scans, the terminology and experience to know my prognosis is not good. After 8 hours of chemo infusion today I asked my Oncologist for a letter signed by him stating my diagnosis to mail to my daughter and son in law who are in the Air Force several states away and need this document to apply for Humanitarian orders to be transferred closer to me. My doctor gave me the letter and I read the letter of course and when you see words like "advanced stage" and "months to live" the shock sets in deeper. Today I am symptom free except chemo side effects making me miserable. I am getting chemo for myself and my family because they need me to fight, however I have accepted the probable outcome, have made all my final arrangements and continue in prayer daily. There's a book someone gave me called Radical Remission I thought it was worth reading. Wishing everyone the best! ... View more