Hey Maya, yes the small things count, and what was hopes and dreams before this journey started seem now to have changed to getting to the next birthday or christmas, mowing the yard or at the moment Brucie being able to get down to the yard on his own (waiting on a ramp to start being built). some days my daughter seems more grown up than i am and will aproach questions straight out that at times i can find it hard to face. She is still a happy bubbly child most of the time but like the adults involved; she does have days where her fears show through, or a small thing will make her cry, her friends at school find these times hard to deal with and can tease her through not understanding but she is at a small school, and we have some fantastic teachers who keep me informed. Brucie is on clonazepam for siezures after trialing a whole big range this was the one the he found easiest to take, it is one that our Dr gaurenteed he would not have a seizure on unless his levels became to low. He has only had one seizure since the big one that showed the tumour was there and it was a massive one. After travelling 6 hrs in one day back and forth to the big hospital in Brisbane. we now split the trip over a few days so have not had any issues. i do suspect he has mild black out seizures at times but the are so fleeting i am unsure. We were also told no chmoe to begin with and would look at it when the tumour regrew, after the 2nd one was removed in feb this year they sent us off to start, i had major concerns over health issues as Brucie was not well ( from at the time minor issues) and the Dr said no we want to start him now. Brucie had one weeks does of temadol; Bang the minor issues were now major issues, and we have just returned from a months stay in Brisbane hospital, with "NO Chemo" stated by his lung doctor. It will kill you. So the waiting again to see when a new tumour pops up and just take each day as it comes, I'm just happy we have another day.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.