Hi there, I have had liver cancer (secondary, carcinoid syndrome) for 13 years now and was told I had 3-4 years to live back in 1999. Is your partner's cancer a secondary by chance as only primary liver disease will get a transplant. I have just completed Lutate therapy and my liver function has turned around remarkably. I have tumours in many sites now but still hopeful this last treatment may clear some of it. There's also a thing called Sirtex which may be of value? Please don't take no for answer on there being no treatments available. Happy to exchange info on this with you. Your anger and upset is pretty normal and what made me respond to your post. You need to vent, I appreciate that, but don't sustain that too long as it will tire you out, create unneccessary angst and you wont be any good to your partner. I have two children (9,15) who know everything about my disease and have done so for at least 5 years. Hard to avoid when I have been in and out of hospital so many times. I've found them both to be very supportive, helpful, understanding of my mood swings and they have become stronger kids for it. If they are old enough to understand, then I would tell them, start with the oldest and then wait to see how that is digested, if it's handled well then move to child 2 and so on. It's awkward but it's a gentle approach that's required and you'll be able to detect any changes knowing which ones know. I know that there would be anger if your partner passed away and they didn't know and were old enough to understand and also prepare themselves as the grieving process can be really tough. My mother died when I was 13 from Cancer so I have been there. Having known made it easier to digest and accept when it eventually happened. I hope this makes sense. Keep seeking answers for treatments and ask lots of questions, just don't accept that it's 2 years and that's that! It doesn't have to be a black hole. The Glass is half full, not half empty. Positivity is really needed.
One day at a time and the bad ones need to be forgotten and the good ones need to be remembered and enjoyed, after all, these will be your happy memories. Rich
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