About Trish

Trish

Deni, thank you for sharing your feelings. I said the same to Nigel that there will be one more xmas to share as a family. Time will tell. Take care. Trish

Trish

Glad you had a nice time with your mum and able to do family things. Hopefully 2013 will be good to all. Cheers Trish

Trish

Hi Min, Nigel still in hospital until Monday. Nigel is not responding to the Clexane injections. His saturation levels very low. Will be on oxygen when at home. Very much a changed man. The hospital has arranged for hospice to start coming to our home which Nigel does not want. I think we do as he won't do what I want at times regarding his health. It is a good thing. He is in denial and he is a very angry man - not the man I know. Our daughter is struggling with it all at the moment. so trying to be strong for both of them. Booked a trip to Tassie for our anniversary and to see his family. Not sure if we will be able to go. Though I said I will go on my own. How is Peter, things looking up I trust and that you had a lovely Xmas? Off to the hospital...... Cheers Trish

Trish

Hi Terese, Your response gives me courage. A year is a long time to dissolve the clots. I did not envisage that. Something new to learn. Cheers Trish

Trish

Today we attended our scheduled appointment with the oncologist in Ballarat to commence our Chemo program for the next 6 months. Oncologist was not happy with Nigel's progress after Radiation/Chemo as he is still very weak and very breathless. Doctor sent him for a doppell scan on calf and CT on chest. Diagnosed with blood clots on right leg lower and upper. Both lungs also show a blood clot on each. Now he is in hospital for two days, we now have to learn to give him injections to assist with dissolving the clots. Has anyone else experienced blood clots? Nigel is in a very bad space even before attending this appointment and then to be admitted to hospital has really thrown him. Xmas was good but then went on to tell me and our daughter that this would have been his last and that 2013 will be his last on earth. What do others do in this type of scenario - as he has had two surgeries and we have gone from 18 mths expected life to 8 mths as advised by the surgeon. His last operation they only resected 85% of the tumour. He is usually a fighter as I am and has been very strong until xmas. I so hate this evil beast as this is not the husband I know........

Trish

Hi Minx, Glad things are going well for your husband Peter. Enjoy your Xmas with the kids and Peter and your mum has a good one too. Hard when some one you love lives in another state and going through treatment also. We live outside of Ballarat and my mum is in Sydney and has just got out of hospital for the second time in a week. Tired heart - tough when you really cannot do anything to help remotely. Nigel has having a bad time with the dex as his joints are painful especially around 3am in th morning for a few hrs. Breathing is very shallow and the drs cannot find anything. Oxygen saturation is good and no fluid around the heart or lungs. Otherwise spirits are good and life goes on and looking forward to Xmas with our daughter, my brother and his wife. Have a great day and enjoy. Cheers Trish

Trish

Hi Minx, I trust all is going well with you and your family. Nigel had his 2nd craniotomy 1mth from the first operation. He came out better than the first one - hopefully your husband will get better in time for xmas. Nigel is still the same, but he is getting breathless easily, I want to take him to the doctor but he does not want to go. I have to respect him for that. He thinks it is the radiation as they say it takes 2-3 weeks after you finish to get over it. I am not sure if this relates to the radiation or not as his hands have started to shake and needs a stick to walk with. We do not have our MRI until the 4 Feb 13. Well MInx let me know how things are going. How old is your husband? Talk soon. Cheers Trish

Trish

Hi Minx, I am so sorry to hear the news especially so close to xmas. Again I feel for your husband regarding his driving test. This thing is really an evil beast. Is this your husbands second craniotomy? and 11 cycles of chemo is quite a lot to go through. Our MRI after radiation is not until 5 Feb, again another waiting game....... We have booked a weeks holiday in Tassie mid Jan so something to look forward to. My husband ended up in tears yesterday - his body is not keeping up with his brain as the arms and legs are so weak which I think is from the Dex.. I so feel for him as he will never get off the dex due to his other health issue Addison's Disease. Everything is catching up to him, tremors in the arms and hands along with cramps in the hands each evening. Now that we have finished the radiation I am hoping he will pick up. Though my sister who works for a neurosurgeon in Sydney feels that they could be localised seizures. Well Minx you take care of yourself and your husband and let me know how things go over the next week or two. Trish

Trish

Hi Min, I feel for your husband regarding his motorbike. My husband would be devastated if he sold his bikes. We have about 8 but not all on the road. I take him for some rides and then rely on others to take him out. He also restores them, but finding this hard as concentration is not the best and tires easy. We start our first chemo program early Jan and not sure what we are in for. Fatigue will be the killer I think. Good luck with the licence process as this is something my husband will not be able to get any time. Please share the MRI findings and will be thinking of you next week. Trish

Trish

Jan, I am sorry to read of your loss - my thoughts are with you. Thank you for your offer to chat, I am sure I will take you up in time. Trish

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