Ronan Helen and Michael are great people. My wife had 2 seziures about a month after finishing radiotherapy. She recovered from them and is now in Gosford Hospital for swelling on the brain again caused by chemo. She is currenlty very weak and confused but Marina tells me she will come good. In fact this is actually a good thing as it means the cancer is sensitive to the treatment and causes flare ups which is the cancer dying. Be very aware of any headaches that last longer than normal. It is a very long and hard battle and I have certainly had my ups and downs but never give up hope there is amazing research going on at the moment so we have to get them to hang in. Coleen Stevens is the co-ordinator for the Central Coast Health Brain Cancer she is a great person if you have not spoken to her you should. Send me a Private Message here, I am happy to help out if I can. Terry ... View more

Hi Ronan It is certainly a living nightmare. My wife is nearly finished her second week. After my wife was operated in Dec we were ushered out of the John Hunter without much info. We were contacted by the Cenral Coast Co-orindator for Brain Tumours(Nurse) who gave us heaps of info, She told us that RNS is the best as they specialise in the Brain. Dr Helen Wheeler & A/Prof M.Back and they have access to all the medical trials. They have accommdation available and there is also a travel scheme where they assist with payment of travel and accommodation. There is also a group called Canassist who supply accommodation. Everything I read about this sh## disease is you have to be treated by a Drs who specialise in this field. Your brother will have a month off and then start 6 weeks of Radio/Chemo. Chemo is a tablet at home. My wife is coping well so far. If you need anything don't hesitate to contact. Tezza ... View more

Hi Jo We live on the Central Coast and are travelling to RNS for radio 5 days a week. In Dec my wife of 35 years had a golf ball size Grade 4 GBM. She is coping really well with both chemo and radio therapy but is only week 2. They got hearly all out and apart from some short term memory loss she is pretty good. I am like you so fearful of what the future holds. Where is your husband being treated. We were told that Royal North Shore is the best of the best for treating brain tumours. Keep in touch. Tezza ... View more