Hi, I was diagnosed with GBM (astrocytoma IV). Different to your tumour. I have been on Temozolomide (Temodal). I had a craniotomy where they removed (well most of it) a 4-5cm tumour. Then 6 weeks Chemo and Rad. Now up to 3 month of chemo (5 days every 23). Side effects are not too bad as long as I take my anti-nausea tabs. Chemo has shattered my bloods, platelets and neutrophils(?spelling)falling, so get pretty tired. Have also had hives and mouth ulcers.
Note your post March......hope you are doing well.
Sending you positive thoughts.
... View more