May 2013
Hi Julie,
Re: Surviving survivorship: the challenge of late onset dysphagia.
In the abstract, the last sentence starts "In this paper":
The "paper" is a "a free paper presented at a meeting" & one of its co-authors that I contacted has said "it has some patient images – they have consented for me to use them for presentations but I am a little loathed to forward the presentation itself on because of this. The abstract contains the stats regarding this anyway".
If you give me your email address, I can send you the complete paper:
Dysphagia After Radiotherapy for Head and Neck Cancer: Etiology, Clinical Presentation, and Efficacy of Current Treatments June 2010
Regards
gboothy
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May 2013
Hi Jules2,
Thanks for that.
You're on the ball!
The full abstract of "Surviving survivorship: the challenge of late
onset dysphagia", is in my link & here on page 9.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
See also in relation to the above, "Effect pretty hard to swallow":
http://www.theleader.com.au/story/1239178/effect-pretty-hard-to-swallow/
I have communicated with two Late Onset Radiation Induced Fibrosis sufferers; 14 & 24 years after radiotherapy!
My ENT Surgeon tells me that the irradiated patients most likely to develop Late Onset Radiation Induced Fibrosis are:
(a) Bilaterally irradiated patients (?)
(b) Bilaterally irradiated Oropharyngeal (base of the tongue) Cancer patients.
Lesson: Report sudden dysphagia to your ENT Surgeon, and if confirmed, an appointment with a Speech Pathologist may be made to start immediate exercises.
For All Members:
See: "Dysphagia After Radiotherapy for Head and Neck Cancer: Etiology, Clinical Presentation, and Efficacy of Current Treatments":
http://div13perspectives.asha.org/content/19/2/32.abstract
A Specialist with privileged access may get you the full paper.
Regards
gboothy
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May 2013
In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).
My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.
My Current Operations: Rod Dilation by ENT Surgeon of the UES - day procedure, Balloon Dilation by ENT Surgeon of the UES - day procedure (soon) and Cricopharyngeal Myotomy (later).
Viewers can read an abstract (on page 9):
Surviving survivorship: the challenge of late onset dysphagia.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
... View more
May 2013
In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).
My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.
My Current Operations: Rod Dilation by ENT Surgeon of the UES - day procedure, Balloon Dilation by ENT Surgeon of the UES - day procedure (soon) and Cricopharyngeal Myotomy (later).
Viewers can read an abstract (on page 9):
Surviving survivorship: the challenge of late onset dysphagia.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
... View more
May 2013
In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).
My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.
My Current Operations: Rod Dilation by ENT Surgeon of the UES - day procedure, Balloon Dilation by ENT Surgeon of the UES - day procedure (soon) and Cricopharyngeal Myotomy (later).
Viewers can read an abstract (on page 9):
Surviving survivorship: the challenge of late onset dysphagia.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
... View more
May 2013
In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).
My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.
My Current Operations: Rod Dilation by ENT Surgeon of the UES - day procedure, Balloon Dilation by ENT Surgeon of the UES - day procedure (soon) and Cricopharyngeal Myotomy (later).
Viewers can read an abstract (on page 9):
Surviving survivorship: the challenge of late onset dysphagia.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
... View more
May 2013
In 2012, I developed Radiation Induced Fibrosis (RIF) or Radiation Fibrosis Syndrome (RFS), more specifically sudden Late Onset Radiation Induced Fibrosis; Velopharyngeal Incompetence & Severe Dysphagia (fibrosis from the Soft Palate down to the Upper Esophageal Sphincter, inclusive).
My Current Treatment: SLP exercises, "Smooth Pureed" diet plus Resource Plus medical drinks and Pentoxifylline & Tocopherol (Vitamin E) antioxidant therapy.
My Current Operations: Rod Dilation by ENT Surgeon of the UES - day procedure, Balloon Dilation by ENT Surgeon of the UES - day procedure (soon) and Cricopharyngeal Myotomy (later).
Viewers can read an abstract (on page 9):
Surviving survivorship: the challenge of late onset dysphagia.
http://www.anzjsurg.com/SpringboardWebApp/userfiles/anzjs/file/2011%20Tri-Society%20Head%20and%20Neck%20Oncology%20Meeting%281%29.pdf
... View more