Hi Rosemary, I did go online, found few web sites that gave me a little more information. I still feel very unsure about the future of the cancer. I was told that if they do go back in for surgery that I will have the chemo from the inside, my doctor called it HIPEC, I looked them both up they seem similar. I'm still waiting to hear from the Andrew Love Cancer Centre to get an appointment with them. Take care of yourself Regards Julie ... View more

Hi Rosemary, I did go online, found few web sites that gave me a little more information. I still feel very unsure about the future of the cancer. I was told that if they do go back in for surgery that I will have the chemo from the inside, my doctor called it HIPEC, I looked them both up they seem similar. I'm still waiting to hear from the Andrew Love Cancer Centre to get an appointment with them. Take care of yourself Regards Julie ... View more

Hi Starcee, It is a very strange feeling to have a cancer that is rare. It is nice to hear from someone else that is in the same situation as me. Did any of the jelly get in contact with any other part of you body? What are they doing for your treatment? I'm waiting to hear from the Andrew Love cancer centre in Geelong so I can meet with them to find out what they are going to do with me. All I know is that they a just going to monitor me, I don't how frequently yet. Hope to talk again soon Regards Julie ... View more

Hi Rosey, It's nice to meet someone who has the same type of cancer and knows a little about our unique type of cancer. I haven't spoke to anyone else who has Appendix cancer, have you? On Monday April the 15th I had been at home all day with pain in my abdomen. On Tuesday morning the pain had not gone, so I went to the doctors, he sent me to the Geelong Emergency department with suspected appendicitis or a cyst had burst in my ovaries, after an ultrasound, the thought it to be a twisted ovary. Wednesday morning when into theatre for key hole surgery which was supposed to take an hour, Six hours I woke from surgery to be told that they had removed my appendix also half my large intestine and given me a hysterectomy because the tumor when it had burst, had left deposits of tumor cells in my abdomen. I was referred to the Peter Mac Cancer Centre in Melbourne, they did not know a lot about the cancer, they did some blood tests and a PET scan they then tested the tumour and found out that it was a slow growing cancer. I do not need chemo as they think they got it all in the surgery. So now I have been referred back to the Geelong Hospital to the Andrew Love Cancer Centre to have regular blood test and scans to keep an eye on me. What are they going to do in the surgery, that they didn't before, and are you going to have chemo at some stage? I am 42 years old, married with an 18 year boy and a 20 year old girl, may I asked how old you are Rosie, I'm interest in knowing what is the average age of people are who get appendix cancer. Regards Julie ... View more

Thank You Gail, someone did respond to my blog. Julie ... View more