This website uses cookies. By clicking Accept, you consent to the use of cookies. Click Here to learn more about how we use cookies.
Accept
Reject
Cancer Council Online Community
Need help nowContact
Join
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 
rrsoper
Not applicable
1
Post
0
Hearts
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 
since March 2009
November 2016
cancel
Turn on suggestions
Auto-suggest helps you quickly narrow down your search results by suggesting possible matches as you type.
Showing results for 
Search instead for 
Did you mean: 

merkel cell carcinoma

by in Living with and beyond cancer
February 2009
February 2009
Hi,I just read the posts by "Merkel".  It sounds like you've had a long and arduous journey with MCC.  I'm so glad to hear you are in the clear now!  I will check into the trials that have been done at the hospital where you recieved treatment.    I'm in the US and my stepfather(Scott) was diagnosed stage 4(liver metastasis).  He had a "Spontaneous Remission" and has been in the clear for 9 months now.  We are quite certain it will never come back as MCC is such an immune responsive cancer and once the immune system "recognizes" MCC it makes "memory cells"  that can now go after it again in the future.  That's the theory anyway. There have been many SR's in MCC and there has never been a recurrance to date that I have found.  Here's Scott's story if anyone is interested: http://groups.google.com/group/merkelcell/web/late-stage-mcc-recovery?hl=enI'm writing to let anyone with MCC know that there is a wonderful support group at:  http://groups.google.com/group/merkelcell It's an amazing and diverse group that is very active.  The group is in regular contact with one of the leading authorities and researchers on MCC named Dr. Paul Nghiem.  Dr. Nghiems website with the latest info. and papers on MCC is www.Merkelcell.org.  You can also get to the supporty group from this site under "useful information/links".  Be Well-Love-Rachel ... View more
Latest Tags
No tags yet
Connect
Contact us
More information
Join the community
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work. We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.
© Cancer Council NSW 2024 Head Office Address: 153 Dowling Street, Woolloomooloo NSW 2011. Cancer Council NSW is registered with the Australian Taxation Office as an Income Tax Exempt Charity: Charitable Fundraising Authority No. 18521.