Hi NickB - Hopefully you still come onto this site as it was quite a few months ago that you posted. If you are still seeking information from others who have been through similar experiences as yourself - there are lots of people out there on an international facebook site called 'Chondrosarcoma Support Group'. I am on there as my husband has been diagnosed with his 4th episode of CS in his sacrum (tailbone) and it cannot be operated on or cured this time. There are people on this site from the US, Australia, UK, Europe, Ireland etc that all have chondrosarcoma in various area's throughout their bodies and can give advice on what worked for them etc. Where in Australia are you? We are in Perth. Good luck and hope things have gone well for you since you last posted here. Jodii ... View more