Hi Libby, My wife was diagnosed with EMPD around the vulvar, treated with extensive surgical excision and a lotus petal flap repair just over two years ago.  Her margins were clear and so far there has been no recurrence.  I have read as much as I can find about this condition and it seems to present health professionals with considerable challenges.  Especially with determining the margins for surgery. The literature on recurrence rates is all over place, ranges from 30 to 50 percent.     I am assuming that EPPD is the same condition as my wife just in a different position. These are rare skin conditions and to my knowledge the Lifehouse in Sydney has the most experience in treating them.   Your post was back in August so my guess is you have had further treatment.  I hope this has been successful and you are more comfortable.  Life takes some strange directions and this is one we could never anticipate or prepare for.   Take care   ... View more