Hi everyone, My dad was diagnosed with tongue cancer and had half of his tongue removed along with some lymph nodes. He was cut from his left ear to the middle of his neck. He thankfully beat cancer 4 months ago, but his pain seems almost unbareable and I have no clue how to help. He complains of jaw pain. It seems as though the surgery has altered the muscles in his face causing his jaw to be pulled into the jaw joint causing serious pain. Along with that, he has shooting pain all the way from his ear to his leg. The doctors said nerves in his neck were cut from the surgery. He was put on nerve medicine but he stopped because it made him feel icky. His scars are so tight and uncomfortable that he can’t even lay in bed to sleep at night because he feels like he is choking on his new tongue and from the tightness across his neck. His bed is his recliner. Has anyone else experienced this? Does he just have to deal with this for the rest of his life? Any recommendations for treatment? Any cream or vitamins or food? I’ve been doing so much research but my mom doesn’t think he should use anything like essential oils because that’s just more “chemicals” being put into his body according to her. I think he should go to physical/occupational therapy. I don’t want him to depend on pain pills for the rest of his life if there are options. I feel like he just complains to the doctors and they brush him off. I’m desperate because he’s in a rut and seems to have no gleam of hope. Thank you.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.