Hi, my name is Natalie and I’m 43. My story is long I hope I don’t go on too long. I have not felt well for 3 years now, I seem to be getting worse slowly by slowly. Started sept 2016 I suddenly developed a DVt in left lower leg after never having these troubles before. I had none of the risk factors doc asked me about just a semi long bus ride of 3h. They did some blood test and said didn’t know why I had clot put me on Xarelto for few months. I thought that was it but then in March 2017 I had pulmonary embolism clots in both lungs, they again did blood test and said didn’t know why and put me on xarelto for life, later fall 2017 I was feeling really tired and having heavy periods, went to my doc she did exam and more blood test which came back severe anemia and vitamin d and calcium low, she did stool exam and was satisfied with that. I was put on iron for 6 months dec 2017 I started having many symptoms dizzy, tired, headaches, no appetite, strange pins and needles in left arm, muscles twitching in feet etc . I went to doctor mine, and internal medicine specialist I was referred to and other at clinic many times for all of this and they would do CBC blood test, test kidneys, liver, electrolytes etc and always said it was all normal. But I never felt normal and some things like tingling in fingers, twitching muscles etc never stopped. I found hard lump under armpit and showed doc she referred me for a ultrasound but they said it was a cyst. I also developed a hard lump on back of my head near my neck that hurts when I lie on it but doc said that was my bone...why would it suddenly hurt? I started getting pain in lower back and when feeling there noticed 2 hard movable lumps on either side of spine my doc referred me for scan of those and the radiologist said he couldn’t find anything, i had iud put in for heavy periods and then had non stop period for 2 months and at the end iud fell out. Recently I’ve been having pain in my bones everywhere. Big toe, foot, lower legs arms, neck sometimes they are dull ache sometimes a sharp pain. And been getting nightsweats and feeling hot but when I take temp I don’t have fever. This isn’t everything but it is going on too long and I fear I sound crazy lol. I’ve seen so many docs and they have done so many blood test....oh last month I was feeling very weak and tired and had test and had severe anemia again...besides the anemia they always say everything is normal. i am afraid I have something like lymphoma or blood cancer that has maybe spread after all this time. But would is this possible I have seen so many docs and none of them can detect something like this? I really have no idea what to do anymore. I’m so worried and confused 😞 sorry for writing a novel,
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