June 2019
1 Kudo
PET scan was good as contained to bladder. Been lucky with nausea not getting to bad. Have to lose weight for opeation so that's not a problem at the moment. I'm a week into the second round of chemo and very cloudy in the head. Was lucky to spend some time with and talk with some people who took me through the bag option. Plus found a great forum on FB - Neobladder Nexus. Got the monkey off my back by attempting a self catheterisation and the 'unease' disappeared so scheduled for a neobladder on 31st July. Darren
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May 2019
1 Kudo
Hi folks Found out on Tuesday 14th May that I have T2 Bladder Cancer. Looks like its contained to the bladder muscle so having PET scan on Monday and start 3 rounds of Chemo on Tuesday. Feeling calm now that I know what it is and where it is. The waiting for the 1st Cystoscopy was the worst. I have to have bladder out and was hoping to chat with some 'Bag folks' and some 'Neobladder folks' to hear their experiences.
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