Hi Guys, we did follow up with the oncologist and started on the radiation treatment so the tumour can be targeted and shrink. Radiation caused few issues itself in the first week then continued gradually increasing as the day went by. It was advised to insert a port a Cath week later which was done followed by chemo forfox 4 4 days later via tube that gets consumed over 48 hours but at home. Unfortunately, post chemo things got worse as she constantly suffered from    rectum pain and discomfort which increased to unbearable  that we rushed her to the hospital. After overnight stay they discharged her saying that rectum pain is due to being badly constipated. However, come Sun mum temperature shot up to 38.9 and we rushed back into emergency again. After thorough check up we were sent home Sunday night. But next day temp was exceeding again to 38.8 and we were back in the hospital again. She has been in excruciating pain since then and still in hospital. Dr did blood checks ups and put her on antibiotics but cause of temperature isn’t known yet. Dr are saying that she may have developed ulcer in the rectum which may be causing this agonising pain. Not sure what is happening and coming Monday she supposed to start 2nd round of FOXFOR 4.  it has been traumatic time in the family and our inability to help her.  ... View more

Hi Phil,   I hope with this message you are well and recovering from the treatment. Apology for the delay response. It has been concerning past 11 days and yet we are still unsure about how the doctors progressing with my mum’s  treatment. As I mentioned previously since stopping Capecitabine on 24th Dec mum haven’t received any treatment and the oncologist advised now is that they will do the radiation therapy to shrink the tumour. This is strange because previously they decided that they won’t be doing this and went ahead with Capecitabine orally after first infusion. My mum seems to be ok but do get pains in her leg and feels nauseous tired even though there has been no treatment for 11 days. I am getting quite worried now because oncologist  said after the diagnosis that the treatment needs to start straight away to control the spread of metastasis. Tomorrow there is a planned radiation treatment so we are pretty much at the hands of the expert at the moment even though there has been such a big gap without any treatment since 24th Dec. There is no talk of surgery at all at this stage even through after the colonoscopy, surgeon wanted to operate once the course of radiation is completed, but oncologist said the surgery won’t happen. We are so blind sided at the moment that knowing the unknown scaring us at the moment. Thanks for your advice and sharing your experience so we can manage our mum’s health better with having knowledge and advice you provided.   regards, Malikshaz ... View more

Thank you for your reply. The leg pain was more to do with cramps and muscle tightening due to sitting down and awkwardly walking. She is seeing oncologist today to see what alternative chemo she can have as she had two days gap since her hospital visit where they told her to stop Capecitabine medicine. Not sure what alternative there is but I’m hoping that something better will suit her as the Capecitabine really changed her completely in 4 days she was on these Chemo tablets.  ... View more