I had anal cancer about 4 years ago resulting in what was termed aggressive treatment. My chemotherapy and radiation treatment happened at the same time and the radiation was quite extensive. Post treatment I have severe continence issues and have tried many things including having a sacro-neuromudulater inserted which helped about 70 - 80% of the time however even though I have some improvement I still have severe continence issues. Initially I was relieved not to have a colostomy, however I now think this would improve my quality of life. It is not a decision I have made easily, and I still don't know if my surgeon would consider it. I also don't know if it really is what I want. I would be interested to hear from anyone who has had a colostomy, I think it would help to know how it has affected your quality of life.
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I had bowel cancer which resulted in quite a lot of radiation treatments but I can't remember how many. I was hospitalized for the last couple of weeks of treatment and a couple of weeks after as I needed quite a lot of morphine to help with the pain. I was told my radiation was extensive hence the pain and side effects. I did eventually return to work for a couple of years then took early retirement. I completely understand where you are coming from the radiation has affected my bones but not to the extent you have. It also calcified my ureter (the tube from the kidney to the bladder). A urologist suggested the easiest solution was to have my right kidney removed but he was concerned if it affected the other ureter I could be in trouble. I had major surgery to remove the damage to the ureter and re implant it into the bladder. It was only in March and only partially successful. I live with constant hip pain and can't remember the last time I had a good nights sleep. I am struggling at the moment to achieve adequate pain relief which also severely affects my day to day life. The treatment has also left me with continence issues which has negatively affected my quality of life severely limiting all activities.
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Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.