Hello Community, I am really eager to try and understand about this rare cancer, I understand it can occur differently in individuals, however there must be a trigger something in our choice of lifestyle that may trigger the cancer gene?? I may also be delusional but worth a shot 🙂
I was diagnosed with ACC in November 2012 after a biopsy in late October I think I had four days to process what was happening and my surgery came an went and they had to remove my entire eye the works!! Very angry because I have no answer as to Why? How ?
My tumour was 30mm x 15mm in my lacrimal gland, for almost 5 years I had pain in my crease of my eyelid and at times my eyelid would droop I had sharp shooting pains and shocking migraines but these symptoms progressively became worse early in 2013.
I had my surgery on Nov 27, I am adjusting slowly to monocular vision which is more daunting than I thought but getting there, I also have 3 kids under 12 and I am only 37 years old!
I am interested in all that have been diagnosed with this cancer to see if there is a common theme amongst us all that may be a trigger ?? I was a energy drink junkie 3-4 cans of V a day for about 4 years, that's the only thing different that I was doing !!! Staying positive because I choose Life
Looking forward to March ACC in Brisbane gathering - thanks Sylvia for posting !
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.