Hello Community, I am really eager to try and understand about this rare cancer, I understand it can occur differently in individuals, however there must be a trigger something in our choice of lifestyle that may trigger the cancer gene?? I may also be delusional but worth a shot 🙂
I was diagnosed with ACC in November 2012 after a biopsy in late October I think I had four days to process what was happening and my surgery came an went and they had to remove my entire eye the works!! Very angry because I have no answer as to Why? How ?
My tumour was 30mm x 15mm in my lacrimal gland, for almost 5 years I had pain in my crease of my eyelid and at times my eyelid would droop I had sharp shooting pains and shocking migraines but these symptoms progressively became worse early in 2013.
I had my surgery on Nov 27, I am adjusting slowly to monocular vision which is more daunting than I thought but getting there, I also have 3 kids under 12 and I am only 37 years old!
I am interested in all that have been diagnosed with this cancer to see if there is a common theme amongst us all that may be a trigger ?? I was a energy drink junkie 3-4 cans of V a day for about 4 years, that's the only thing different that I was doing !!! Staying positive because I choose Life
Looking forward to March ACC in Brisbane gathering - thanks Sylvia for posting !
