Adenoid Cystic Carcinoma

[jojo1980]

Well 13 mths after radiation and have been told I have microscopic cancer. Not sure on how i feel about it but the doctor told me as mine is so slow growing it shouldn't do anything for a good couple of years. Feeling not to bad. Have had to go back to work as we are struggling financially. And it is taking its toll on me with 3 young children youngest 22mths. I would love to give it up as i worry what the stress is doing to my body but we just cant afford to. Ct scan in november to see if i have lung mets so im hoping it all come back clear. Will keep you all posted

[SILLY]

I just saw this blog now and know it's close to 2 years old . Please reply to my comment if you still use this site . Do you have Adenoid Cystic Carcinoma ? If so I can help you to meet others online who have this , as do I .I hope you don't have lung mets but know most can survive a long time with these .

[brighton69]

I was diagnosed with ACC last month. Would appreciate keeping in contact with others

[brighton69]

I was diagnosed with ACC last month. Would appreciate keeping in contact with others

[jojo1980]

Hi no worries. I'm in Queensland whereabouts are you from. There are other adenoid pages have you found them. Here if you ever need to chat. Jodi.

[jojo1980]

Hello yes 3 years since diagnosed but have some worrying thing. I have a few sights I'm on. Thank you for the reply.

[brighton69]

Thanks yes I am from Sydney. I am 1 week into Radiotherapy plus chemo. Unfortunately it is not operable. How are you?

[brighton69]

Thanks yes I am from Sydney. I am 1 week into Radiotherapy plus chemo. Unfortunately it is not operable. How are you?

[SILLY]

BRIGHTON 69 , 

Are you still here ?