I am still waiting to be accepted into the Lutate program at RBWH. The program Director has been on sick leave for 7 weeks. I may do the Study trial of LX 1606 (telotristat etiprate)which suppresses the symtoms of Carcinoid Syndrome. I still have 3 weekly injections of Lanreotide. First week I am almost symptom free, then 2nd week just average, then 3rd week symptoms return (flushing and severe itching caused by Histamine emissions from the neuro-endocrine tumors in the liver) However I thank God I am still alive and fairly well after 2 and a half years. Occasionally I have a bad day consisting of flu like symptoms; fever, joint pains, diarrhea and extreme weakness. The next day I am quickly recovered.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.