I imagine it is like all of the other treatment options for GBM some work for some and not for others. I plan to start reading up on avastin myself as who knows whats around the corner for Pete.
Best of luck.
Thank Minx,
When I first posted here back in January we has just returned from Paris feeling slightly hopeful for a few more years. Or, until they found a cure!
Last Friday that all changed. During a routine MRI we were told there was a tumour in the caudate nucleus and that was inoperable. Live with that over the weekend, cry a lot, and wait till CNS clinic visit on Thursday. Here we are told that a tumour, located in the frontal lobe that was removed last August had regrown. This is in addition to the the Caudate tumour and that there is a query on the opposite side to the frontal lobe tumour. WOW! Another craniotomy is offered but I got the sense they were being nice. If we take surgery it stands to give us 5 months till we see dephiceit. If we do nothing, 3 months.
And, then there's Avastin. $15k and maybe it will change the scan and maybe it will not.
We are so confused and scared. We don't know what to do. All this for us and we at least have some medical knowledge in our home, my husband is a GP but he simply does not know what to do.
This morning we go grocery shopping. At the checkout, there is a woman and her husband in front going through. 2 mins into our waiting and my husband says, excuse mame, there's a line here, you shouldn't push in!
3 months they say? Reality is, no one knows. So, how in the hell can we decide on our best path for care if they don't know!!!!!!!
Scared, alone and incredibly frustrated.
Jo
Hi Jo
Avastin prevented growth for 3 months for Lorraine She had few side reactions so I suppose I can say some extra quality time (quality time being maintaining how she was with a GBM tumour at that stage)
Geoff
I was told by Charlie Teo's office (sought a second opinion there when we were told the GBM was inoperable, which they confirmed) that my husband should be on Temodal and Avastin - so far we've only been offered temodal. Apparently it's offered more widely in the US.
All the best.
