Was wondering if there is anyone out there who has had breast cancer which has then metastized to bone cancer. Would appreciate sharing of information.
Hi Petunia,
Welcome to the site! there was a lovely lady on here previously who has had the same experience after surviving 3 previous bouts of breast cancer and another type of cancer in childhood, but alas she is no longer on the site.
There are also other ladies on here who have had breast cancer and the cancer council I believe have information available as well. Best of luck in your quest for information and hope to see you on the site for a chat :)
Amanda XX
Hi - just scrolling through and found your note. I am in the position where diagnosed with breast cancer that spread to my bones. Went straight to Stage 4. Like you I havnt found many people in this situation. Happy to chat.
Hi AmandaC - thanks for your response. I have sisters who have had breast cancer twice; the older one has recently had a mastectomy and needs no further treatment. However, my other sister now has bone cancer; having had breast cancer 5 years ago.
Gayser, am interested in discussing treatment. My sister is following a strict diet and looking at alternatives. She has Zometta every 4 weeks (chemo will be a last resort) - her metastis is quite extensive - skull, shoulder, spine, hips, ribs. She is 51. Look forward to hearing from you.
Hi Petunia - First of all I am such a learner at this blogging process so bear with me I am typing this and hoping at the same time it will get through to you. Like your sister I have the bone drug every four weeks and I am having Bondronat - same as Zometa. I have had about four doses now and find it okay. I have undergone chemotherapy, surgery and radiotherapy so I have gone through the whole lot. You mention chemo as a last resort - just interested why is that? I originally had the bone metatsis in my shoulder blade and my spine. My first bone scan after chemo completed showed they had improved (one during chemo showed no change) and my last bone scan (second after chemo) showed that they had stayed the same. There was slight concern of something in my lower back but I have a bad back anyway and I am just crossing my fingers that that is what is showing up. I have stayed mainly to traditional treatments (as mentioned above) but do plan over the Christmas break to get fit and start a better diet. I hope that this helps and I wish you well - happy to chat anytime. P.S. I am 47.
Hello Gayser
I have BC and bone mets. Have had radiation and am on monthly zometa as well as zoladex implant and arimidex. Had neutropnia after the radiation. Started changes to my diet shortly after I was diagnosed in Feb this year - now am gluten, dairy, sugar, alcohol free. Read an e book by Bill Henderson and got some tips. Have also read other e books which I downloaded - Cancer Pioneers, Outsmart Your Cancer, Best German Cancer Clinics etc. My tumour marker has come down from 66 in May to 23 in August and a month ago now 13. Have done Navarro Urine test and awaiting results. Am also drinking Budwig smoothie (flaxseed oil and cottage cheese), as well as taking supplements, barley grass and alkalising. There is even a chatroom dedicated to cancer survivors who are doing the flaxseed oil and cottage cheese smoothie. (Yahoo7) Also got some cd's and books from the Simonton Cancer Centre in the US - fantastic info about meditation, imagery etc. Can't recommend these highly enough. Found a man on the internet called Jerry Nall (krysalis.net I think) who beat prostate cancer bone mets just with diet and supplements. Also found a man called Vernon who beat prostate cancer with bone mets with a high dose regime of bicarb soda and maple syrup (not recommended while doing bisphosonates I would think). Will have a PET scan in Brisbane this month in a couple of weeks to see how I am going as a PET will show if my tumours are alive or dying - dying I think. My bone scan showed an increase in intensity and size of my mets, however I don't understand how this can be the case and if so then why my tumour markers are steadily coming down. It is my understanding that bone scans don't show dying tumours. Have had conflicting advice from my doctors. Will wait and see.
