Saw Dipti (hematologist) today 3 weeks since last visit when she arranged urgent bloods - she then went away for 3 weeks. Upshot platelets are low as are lymphocytes. Dipti had ordered a PET scan at the end of July when I finished chemo and even though she had told Canberra Hospital 3 weeks ago that it was urgent as it was a possible recurrence I have still not heard from Canberra Hospital.
So now have an appointment for the PET scan at Liverpool hospital on 1st November. Also now have an appointment with a rheumatologist in Randwick as there are no appointments here until March 2017!
The worst part of the day was Dipti has said I am symptomatic (pain, even though I am on Targin 30/15, night sweats, low pathology and exhaustion) of a recurrence and as it has only been 3 months since I finished chemo. She has also ordered Full body CT - That I can get done here LOL. It is getting a bit much and very, very hard to stay positive
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.