I guess someone found my tongue in cheek moan about Dorovitch offensive as it appears to have been removed. Strange my poems berating Dorovitch about their late delivery of results last June are still there. Maybe prose is more offensive than poetry. Harker - be careful, I don;t think they are your favourite organisation either. Well ten days after they took blood I got the results with the following message: These results have been released under the Privacy Act (Cth) and the Health Records Act (Vic). The results and any interpretive comments on the report are primarily intended for the requesting medical practitioner. We would therefore urge you to seek medical assistance in the interpretation of the attached results, First time I have had this. The strange thing is my medical oncologist, whom I am seeing tomorrow, always requests a copy go to me. The appointment to see him was made six months ago! Clearly the author of this note does not think I should have a copy of my own pathology results. However, what were the results. Everything within normal limits except for the blood marker for cancer. It is rising rapidly. So it will be a more scans to see where it has spread to now and then back onto therapy again, to see if it still works. I guess it has always been a case of when, not if! Cheers Sailor I must go down to the sea again, to the lonely sea and the sky; and all I ask is a tall ship and a star to steer her by. John Masefield
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Contributor
The Cruel Sea - Nicholas Monsorat - Beautiful Sailor much loved from this drugged up Teach. May you have the charts and the Gods guiding your beautiful ship to steady waters and to a safe shore. xoxoxo Teach.
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Bugger! How did the pain summit/conference go? Jill xo
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Regular Contributor
What can I say - Bugger. So sorry that you have to start the merry-go-round again. S
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Frequent Contributor
Yes, bugger. You are in a good space, though, Sailor. You know how to ride this bump. H
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We are all saying bugger to your news - as you said it was a case of when, not if. Yes an absolute bugger. I truly hope the markers drop before your scan and it was just one of those 'unexplained things'. Thank you for your kind words in response to my very depressed state early this morning - I am sure it was the stupid drugs - I was still wide awake at 6.00 am. I may take your advice re counselling - a few people are making my life a little less bearable than I would like it!! When certain people thought I had very little time left on this planet, they couldn't do enough for me and the kindness displayed was very out of character!! Now as I am feeling better because I have been taken off my 2 weeks of oral chemo due to side effects - the same old 'always doing so much for me' attitude is back. I do not ask for anything - I hate (oh oh) asking for help. Things are done without my knowledge or consultation and I am supposed to be eternally grateful - well I won't be ha !! Anyway sorry sailor this was your news and I have done the take over thing again - dear me- naughty - better not let b-in-law know!! I hope everything goes well for you meeeeow wooof and xxoo
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I will second that bugger and raise one! As harker mentioned sailor you do know how to ride the bump ... actually i think this rates a double bugger! Thinking of you. Julie
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Deceased
Hi Jill The pain summit went well. What are we asking for? Pain as the fifth vital sign - that means it will be included in all observations along with temperature, blood pressure, pulse rate and respiration. That pain and pain management be included in the template used by hospitals and specialists to send a letter back to your GP or other specialist. That all cancer patients be informed about pain management and told ways that they can manage it themselves. That all medical practitioners receive education about pain management. In the general pain area, that chronic pain be seen as a condition in it's own right. There are a few more things on the wish list that will be raised soon. cheers Sailor A ship is safe in harbor, but that is not what a ship is for. Anon
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Well i'm gonna triple it......bugger, bugger, bugger! If anyone can ride this wave Sailor it's you... You are one in a million! Hugs Mez xox 😉
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Contributor
poo bum bugger. Keep us updated Sailor! xoxox
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Frequent Contributor
I'll have a quadruple bugger, please, no fries.
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Hi Sailor Good for you! Jill
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Contributor
Bugger does sum it up Sailor!!! Wonderful work with pain summit! I cant believe that it isnt already in the year 2010 set in stone within the medical fraternity!! Beautiful words Teach, Nicole
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Deceased
G'day Thanks for all your thoughts and best wishes. Saw my oncologist yesterday and we are going to play it cautiously and wait another three months and have another set of blood tests. A CT scan has been booked so we can see if it has spread and if so by how much. He is a bit worried about new research on the side effects of the treatment: weight gain - yes to that; fluid retention - yes to that; diabetes - so far no; heart problems - so far none; osteoporosis - so far none. I'm happy to go along with that as I don't like the cognitive side effects, the mood swings and other menopause like effects - I've been through menopause six times so far and I'm not too keen on the seventh time. Cheers Sailor The sea is the soul extended - Anon
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Hey Sailor You and i could be going through menopause together. I am to have a blood test next week i think and then i should know. Mind you i am absolutely over the moon about that bit. I am having interesting side effects from my treatment and apparently no one else in western australia has had them, bit of a hmmmm and the drug company are looking into it apparently. Good thing your onco bloke is going to keep a close eye on you! Cheers Julie
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Contributor
Hi sailor thanks for the update on the Pain Summit. It sounds as though it was worth the trip - even if it was Canberra!!
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