Mum heads to see the Neurosurgeon with my Dad and my younger sister... She is in good spirits, has been since she arrived home from hospital. I wonder if she would come home in such good spirits, time would tell. I was very anxious the entire time they were gone. I kept busy around the house and with the kids. I think all along I was planning for bad news this day... anything better than bad was a bonus. My bonus never came, Mum was diagnosed with a very aggressive tumor, grade 4, Glioblastoma Multiforme of the Brain. She is to start Chemotherapy (oral tablets at home) and radiotherapy at the hospital. All I keep thinking is, why us? Why MY Mum? Why not someone elses... then again, I wouldn't dream of wishing this upon anyone else. Life isn't fair, what did we do wrong? Of course, we did nothing wrong, neither did Mum... life deals us all different cards, we are all made up of different cells, good and bad and of course, we got the bad 😞
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Contributor
I have been reading all your comments and have enjoyed them, dont mean the bad news but you write very well and its great to read something that is step by step Keep in touch and treasure every moment you will see lots of changes with your beautiful mum Try to enjoy the time you have left with her and who knows there is always a possible cure around the table rarsie
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Contributor
Firstly I need to ask how is your mum doing? Nothing can prepare you for such a diagnosis. Wonderful that you all seem to have a great family support structure. I feel that keeping a 'diary' of this time has helped me through tough time. Min
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Occasional Contributor
Hi Min, Mum isn't doing too badly considering everything that she is going through right now. She suffers badly with weakness to both left and right sides of her body, she does what she can manage and then takes a break for a while before she gets back to it again. She struggles to sit still for too long most of the time anyway, even before diagnosis. Her sleeping pattern has shifted dramatically, I think this is due to the Dexamethasone. Around midday each day she wants to just go to bed and sleep, I've pretty much begged her to give into that feeling and do just that, go to bed and sleep... nope, she plods on and fights it. Radiotherapy is every afternoon, she has a volunteer driver for the Cancer Carers come and pick her up around 2.30-3pm Monday to Friday. She has no choice but to slow down then as she is in the car, then waiting at the hospital for her appointment. Yesterday, losing her hair was a down day, she said when it happened, she just wanted to cry and cry. Had they have told her they put the radiation dose up and to expect it, it wouldn't have been so bad. I've started blogging, I will blog the bigger things, the in between days when we are just travelling along the same I won't blog. I hope your journey with GBM is going ok... Dani x
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Occasional Contributor
Thanks Rarsie for your reply... I sat and blogged last night, caught up on the bits that seemed most important, left out the days where we just plod along and do what we do each day... Mum isn't doing too bad at the moment, weakness in both sides, still walking ok, managing most basic household chores and cooking occasionally. Right now she is singing the theme tune to Sesame Street, over and over. She gets stuck on a tune and it sticks there ALL day some days. Dx
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