Hello everyone and my thoughts are with you all.


I was diagnosed with EPPD last year and have had two surgeries to remove what they could see around my anus ... the recovery was pretty nasty,the last surgery. Plastics did a flap repair but on each occasion the stitches didn't hold together (probably 30 in total)...both pathology results stated that the disease was outside the margins of what was cut out.


The surgeons and Oncologists don't seem to know what to do with me as they haven't dealt or seen this before and say I am one in a million it's so rare. They are having another hospital meeting this week but I am starting to get concerned as to my future treatment and outcome. Has anyone else had EPPD.


Thank you and take care

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