Hi all!! So, my husband is back in hospital due to losing six kg in a week......he can't keep food down and he has chronic diarrhea. Yesterday he went out for a walk around the hospital and had a fall (he's 39 and not a falls risk usually).... Anyway, he took skin off everywhere including his face. He has no idea how it happened.... Today I had not heard from him at all. Usually he calls me in the morning to talk to the kids, or request some clothes etc. I texted him and tried to call him throughout the day without success. Not so unusual, sometimes he has bad pain and tries to sleep it off....anyway, when I hadn't heard from him by about six pm, I called the ward. The very lovely nurse then told me that he had had a most unfortunate day, he had started off by falling asleep at the nurses station standing up.....he's been doing that in my kitchen for months.....and the toilet.......and the lounge room.......anyway......they then realized that something was wrong, and called a code on him, he needed narcan (which is what they use to bring junkies out of overdoses) to wake him up.....and they had to give it to him six times over the course of today. And no one called me to tell me this was happening. And the nurse even said it was quite scary.......... I asked to speak to him, and the nurse called me back from his phone and told me to keep it short as he was confused. Anyway, he kept dropping the phone, told me he was confused and had no clue what had happened today. Then hung up. About an hour later, he called again and talked complete gibberish and told me he was just going for a walk.......then hung up again......I have been trying to get through to the ward, but they are not answering, my seven year old is in bed asleep with croup and my four year old won't go to sleep.......what do I do? I have taken the day off work tomorrow to hopefully get some answers but they aren't managing him....we lurch from one crisis to another crisis....but in between he is in Bed, in pain or totally depressed....... He is not living......he is enduring........if he was a dog they would have shot him by now....... Surely he can't be the only person in Australia living like this?? Although I spoke to my cousin tonight who is an ED nurse in a major Sydney hospital and asked her if she had frequent flyers like him......who have cancer that they can't treat, who bounces in and out of hospital with a new crisis frequenly......she replied the only cancer frequent flyers she sees are the ones who get a bowel obstruction, or get infections in their IVs.........where do we fit in????? We live in an amazing country....the doctor that is treating him is reputedly the best in our Area......I can't get him to Sydney, I can't even get him to Brisbane.......he is too unwell to travel..........what do I do?????? Aaaaaaaaaaaaaaarrrrrrrrrrrggggggggggghhhhhhhhhhhhhhhh!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! Frustration is pouring out of me right now......................
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Super Contributor
Hiya purpleangel Wow what a tough time you are having at the mo. Do you have some sort of support network for yourself?? Someone who can perhaps have the kids for you occasionally?? It must be so difficult to be at home and know all that is going on at the hospital. Thinking of you Julie
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What a nightmare!! It sounds like now would be a good time to 'call in the cavalry' (if you have one)- see if your Mum can babysit the kids for a bit so you can have some brain space and get some answers. It was a good idea to take the day off work. I really hope you can get some satisfactory progress. Good luck with everything, sending you ((((((hugs)))))) Emily
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So it is his remaining kidney that caused the overdose.....it stopped working and so the morphine built up in his body and caused the overdose.....at least they know what caused it and are going to change his meds, but now what to do about his kidney.....if that goes.....he's stuffed........although he said today that he would just take one of his mum's- apparently she has offered, but they wouldn't operate on him how he is.....he wouldn't survive. He almost died yesterday a couple of times......his respiratory system was depressed and he was only breathing about 4 times a minute ( which apparently is not very good at all)...... They had a hellish night trying to keep him awake - gave him four showers, pummelled his chest, washed his face with cold water........glad it was them and not me........but this has been happening for months......so his kidney has been switching on and off for months, the morph has been building up in his system and then he goes to sleep for days at a time......which explains why he has slept through the kids fighting on the bed next to him..... And on and on we go on this crazy rollercoaster.............my poor children.......they never signed up for this!!! PA
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Super Contributor
I'm glad you got some answers. Hopefully now things will start getting better and easier. You're doing the best thing you can for your children, and they will know that. Be kind to yourself as well. Emily. xx
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Contributor
Ohh that sounds completly awful! U poor thing... Hang in there, eat, shower and have a cup of coffee! Keep yourself sane.... Thinking of you 😞 xxoo
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Super Contributor
It's good that your husband is in hospital because he is so sick and it is too much for you to deal with at home . Try and find some special times with your children for their enjoyment and yours ,getting away from all the sadness and pain . Try and find some time for yourself to rest or enjoy ,whatever you need most . As someone suggested ,perhaps someone can mind the kids to give you a break . I hope the doctors can come up with a plan to help your husbamd .It must be frightening for him at times ,just as it nust be for you .
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