Paget's disease of the vulva.

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After suffering with Lichen Sclerosus I have now been diagnosed with Paget's disease. It is a very rare pre-cancerous condition. I have elected not to undergo surgery & am using a cream caller Aldara. I am wondering if there are any other women with the same. It is not Extra-mammary Paget's. I am feeling alone as there may be only a couple of hundred women in Australia with this condition.

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