Had my PET scan last Friday and spoke to my oncol Monday - not the results I was after but I wasnt hugely surprised, I just had a gut feeling something was not right even though I always try and remain positive. They feel that I may also have a condition called sarcoidosis, they thought previously before the Hodgkin's was diagnosed that this is what I had and they suspect that I do. Now I have to take some meds before my appt next Friday with my oncol and he's going to organise a CT so we can see if the meds have had any effect and then possibly from there I will have another biopsy. All I can do is remain positive if not for myself but for my children, keep eating well, sleeping well and trying to rebuild my body/strength.
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