Sometimes I just wonder where life will lead us and how long the journey will take. My husband is approaching the 2 year anniversary of his GBM diagnosis - its been a bumpy road but we have also had normality and in some ways I feel we are lucky that this has been the case. He still works , yet can't drive, we go out and socialise and accommodate our life to his limited mobility, we spend time together and time apart, we argue - all normal ! He is about to commence his 19th dose of Temodal with one more to follow - then the oncologists suggests we stop as his body needs the rest. We will have an MRI then to see what is happening - the last few have been stable , tumour still there but growth unchanged ............. but you just know it is lurking there, it feels as though it is just waiting to pounce and catch you off guard. Normality is our focus, and I think we are doing well. There are the bad days but there are also the good - we are off on holidays in 3 weeks and that is our focus, can't wait !
4 Comments
Contributor
Good on you and hubby Smiley. Normality is the thing, The illness is there, but whats wrong with not letting it take over your entire lives. Enjoy the time together, its priceless. Have a great holiday wombat4 \
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Super Contributor
You both seem to be doing the best things. Enjoy your holiday .You both deserve it.
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Contributor
Hi Smiley, Hope you all had a good holiday, our family all went for a week to the beach, just what we needed. What can understand your hubbys chemo must of worked. Keep thinking life is normal Regards rarsie
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Occasional Contributor
This is a big regret for me, so well done on trying (and succeeding!) to live 'normally', as I know it is not an easy thing to do. I hope you enjoyed your holiday together. My husband lived with the GBM diagnosis for 18 months. From day 1 he was severely impaired (physically & mentally) so I felt a bit robbed of the chance to "make the most of life while we can". You are doing the absolute best thing for you and your family - loving and living, now go and enjoy!!
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