i thought things were going really well for us lately but now i know i was just living in a little world of my own. my sister who has beat breast cancer twice has just been diagnosed with mesothelioma and has the biggest battle on her hands. they have given her two option, 1. 3 months of chemo, then operate, then 3 months of chemo again. but then they tell her she may not make it through the op. option 2 is 6 months of chemo then operate. she left the doctors and booked a trip to Bali for her and her husband. as she said, what more can she do. this poor girl has been to hell and back for year and now they thro this at her. then tonight we go out and catch up with friends and one of them asks can they come and visit us tomorrow as they need to talk to me. silly me says...'good i am ready for a good drink'...she says 'Linda i had a mammy last week and they found something wrong. i have to go for a biopsy next week'........ i walked out side and burst into tears so we came home. this has made me so scared as i have my first appointment since having radiation 3 months ago on March 18. i feel so F*****g down at the moment and so angry with the world. why, why. why........... is this happening. are these things sent to try us or what. what am i going to say to my sister, what am i going to say to my friend when she comes tomorrow. at the moment i DONT like the world i live in. Linda
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Contributor
Hi Linda, I'm so sorry to read of this latest news. There really are lots of 'sucky' moments in this world and it looks like you're smack in the middle of some right now. Totally understable that you are feeling down and angry and asking 'why'. Vent to us as much as you need to, you know that it helps, you've been here before. Sending you cyber hugs and strength, Jill xo
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Hi Linda, I'm so sorry about your news. How does the saying go? "It never rains but it pours"......and you are right under that really bad big rain cloud right now. My heart goes out to you girl & you've got every right to be angry & asking "why why why!" I agree with Jill, vent your anger out to us as often as you want & need to & i hope it helps even if it's only a small way. Just remember we do understand all about this horrible disease & what it can do to families & we are here to listen to you. Chin up for the 18th..... Hugs Mez xox 🙂
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thanks ladies for your support. spoke to my sister this morning and she has booked her trip to Bali. they leave the 11 March and come back 18 march ready to start Chemo on 22 march. she sounds ok and is really to fight this thing. the Dr on Sat morning gave her the name of it Peritoneal mesothelioma. now where the hell did she get this from. its suppose to be from asbestos. we have never lived in Whittnoon or any where around there. they say paints, lino, fences and so on. we would all love to know. now the question is..do we all get tested, do they do testing and what goes on from here. i guess we will have to wait and see. Linda
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Hi Linda, Thinking of you today, I noticed it is the first day of your sister's chemo, I imagine it was a tough day for you all, emotionally if not physically. Also thinking of you tomorrow as you have your 'scan', will have fingers and toes crossed for you. Take special care, Jill
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Hi Jill had the visit to the doctor yesterday and peter and i left feeling a bit unsure of what is happening. i have been happy with all the people i have seen over the time but yesterday the Doctor was really off puting. he was unsure as to why i was back and wanted to know why i had the appointment. i told him why i was there and he started to read the notes. he started telling us about what they found and what was to be done. (which i already know) i had to tell him my whole story since the op and radiation. i could see peter was ready to go mad. anyway he checked me out and said come back in August. that was it. i asked him about gene testing, my daughter and blood tests, all he could say was that he did not have answers for me and would follow it up. so as you can see i am not sure why we had the appointment in the first place. i am still a bit bewilded and not sure what to do. i will make an appointment with mannus my doctor and ask him a few questions. i might get better answers. who knows cheers Linda
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Oh Linda, how disappointing and frustrating for you. I can understand your bewilderment, had a similar experience myself years and years ago during our 'quest for children'. It is totally deflating. I hope that you can have better luck with your doctor. How is your sister and your friend that was recently diagnosed? Jill xo
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Hi Jill my sister started her Chemo on Monday. she is at Murdoch. she said she is feeling good but has a small amount of morning sickness. she saw the surgeon today and they said they will be taking the rest of her bowel, her bladder and a small section of her stomach. she has to head to Charlies on tuesday for a pet scan. not sure what this is for. i am guessing that it will tell them more. my firend that went back to perth has been given the all clear. they seem certain its nothing. they said she is to have another mammy in 12 months. i told her if she was worried to go sooner. the van has just been down our way so i guess we will hear of a few more people in the area. its usually what happens. i rang a lady that works here as i heard she is heading back for surgery and possibly radiation in the next few months. she called in this arvo. she is at Charlies as well. i think it was a relief for her to speak to someone who has been treated. she is just 40. i plan to check in on her over the next few months. its not fair when you live so far away and have to leave everyone home. i have given her the details for Crawford House and Milford. just hope she can get in. will chat later cheers Linda
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Hi Linda, Good news to hear about your friend and good advice to tell her not to wait 12 months if she is worried. I guess it's a small relief/comfort to you that your sister is feeling good with her nausea not too overwhelming. However the news from the surgeon probably takes away any comfort from that for you. My understanding of a PET scan is that it will show what spread of the disease there may be. It is a very personal thing - better to know what you are dealing with or too frightening to contemplate??? Thinking of you all, take care, Jill
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