My husband was diagnosed in December 2012 with a GBM, inoperable. He had 5 weeks of stereotactic radiation, ending 20 March, which we had to go to Sydney for. I work for myself writing reports, which I do mostly from home (at least two thirds I can do at home, but the other third is face to face and there is no flexibility in the timing). I have been able to keep doing some work, but because of the inflexibility of the face to face time, I'm reluctant to commit, when my reliability is what gets me repeat work. I could give up completely until .... and pick it up again at that time reasonably easily, but financially we rely on my income. My husband hasn't been able to go back to work, and although he is still on full pay (and his employer will continue to pay him even when he runs out of leave), that will reduce by 20% soon. On top of everything else it's unbelievably painful to make this decision based on money, but you can't live on love alone. I applied for carer payment (the 50 odd dollars a week that is not assets tested) but my application was rejected on the grounds that my husband is not sick enough. I'm not sure how sick you have to be, but he has no use of his left arm, walks with a walking stick because of partial paralysis down his left side because of the tumour (a remant of the biopsy that wasn't even successful in getting pathology - but that's another story), his memory is shot, if I don't give him his pills he either doesn't take them or takes them and some of the other in the box I sort them all out in, and can't do anything in terms of cooking, driving, washing etc. If I could get the carers allowance I would be able to give up work, but given I'm not even eligible for the carers payment it is unlikely to be an option. Because I can do some work from home I'm going to have to keep going but it feels like I'm not able to spend any quality time with my husband because by the time I've finished all the housework/cooking/driving the kids around etc, etc, then have done my work, there just isn't time. Our time in sydney was actually really lovely because it was mostly just the two of us and other than treatments we didn't have to do anything.