Hello
I am new to this site but desperate to learn more about brain cancer that has attacked my 29yr old female cousin.
We only have brothers therefore were like sisters growing up and only live a block apart now (so are still very close).
She was diagnosed in April 2012 after severe headaches and neck pain and operated on almost immediately. Shortly after this she started chemo and radiation that was proving effective however, was only given a 12-18 month period of survival.
In March 2013 an MRI showed the tumour not responding to treatment and growing agressively, she was again operated on and began on Avastin. This proved effective until October this year when she began having seizures. She was admitted to hospital where they operated to releive pressure on the brain and advised us that there was nothing more that could be done however, they would do their best to make her comfortable.
She is a FIGHTER and managed to get an appointment with Charlie Teo who said without surgery, she might have had 14 days.... He operated on her the following day, removing 25% of her brain.
2 months later, she is going ok.
My concerns....
She is not the same person, whilst I understand that she has been through HELL, I struggle to understand what is and isnt normal.
At different times, she reverts back to a baby like state, she doesnt recognise people, wont wake up until someone prompts her, has minimal interest in her 6yr old son, speaks in a slow monotone and stares straight through you.
I just wonder if there are any stimulation activities that she could be doing to keep her brain active or generate interest in different areas etc, should her local GP be seeing her more often or should she be seeing a counsellor...
Her Mother and Father are devestated (as expected) yet are not a great help... Her partner is there to support her but doesnt push for help outside his efforts or his parents (who moved in to help care for her).
Has anyone experienced similar and can offer advice?
Thank you
