Hi rarsie, our daughter had the standard treatment of surgery, rad. & chemo (temodal) I requested after the standard treatment that she would have another 12 months, which after much debate she got....I had done so much research into GBM which all said longer treatment....I told them she had nothing to lose and was not going to take no for an answer, they were dealing wityh my child (although she was 34) here and not some number on their list.
Anyway to date she is doing great and has just watched her son start high school like she said she would.
SO neve rgive up hope.She still has 6 monthly MRI which to date show no visible signs of tumour.
Cheers Femme