Brain Cancer

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Brain Cancer

My 28 year ols son has a gr4 brain tumor has anybody able to share with me
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Re: Brain Cancer

how do i make friends????? help
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Re: Brain Cancer

hey there, im a younger member but am supporting a partner with cancer im 25.. if you need any advice here to help.. how is your son coping with the news? xo
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Re: Brain Cancer

Hi Rarsie, this is an amazing site with so many beautiful amazing people,It helped me so much in the past, I was caring for my courageous father who had head & neck cancer.Chat soon With (((HUGS))) Alison
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Re: Brain Cancer

Hi Rarsie, Not sure what GR4 is but my partner has GBM4 - dx early Aug'12. I'm more than happy to share my experience. Take care
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Hi thanks for joining in to my message, my son has this idea that he will be around till he is sixty, I know that people believe in been positive, but I believe in been realistic, not that I share that with him, What sort of cancer does your partner have
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Hi thanks for joining in to my message, my son has this idea that he will be around till he is sixty, I know that people believe in been positive, but I believe in been realistic, not that I share that with him, What sort of cancer does your partner have
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Re: Brain Cancer

Hi Rarsie, GBM4 (Glioblastoma Multiforme Grave 4) is also brain cancer. My partner's tumour has recently grown back after only 4 rounds of Temodar. So things aren't looking good for us. Fingers cross for a clinical trial that he's likely to participate. The screening process will finish next week and if all goes well, he will be the 3rd guinea pig in the world. @_@
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Re: Brain Cancer

GBM GlioBlastoma Multiforme, has many forms/grades with grade 4 being the most aggressive of the four. It forms in the Glio Cells in the brain. The younger the person the better the results. It has been indicated in paperwork that it grade 4 GBM tends to happen more often in males between the age of 40 to 75 years of age. My husband was not quite 60 when we found out that he has a GBM (we had sent him to hospital with a suspected stroke due to drop in facial muscles). He had surgery to remove a 4 by 3cm tumour from right side frontal lobe. Within 2 months a second tumour started to grow on left side frontal lobe which stopped growing when the radiation (was in the line of fire of the radiation when specialists were radiating the remained of the tumour removed) and chemo started. We continued with MRI' every two months and in March this year, it was found that a third tumour (left side temporal lobe) has grown to over 3cm and after three weeks of phone tag and running around we have been informed that surgery will not be done on this tumour due to affects of surgery. So now we only have raditation and a possibility of chemo, we will know later this month. It has been an interesting ride through cancer, I have learnt so much, I also have found it sad due to watching the decline in my husbands health. Having a positive attitude, getting out there to enjoy life, take many photo', set up a network of family and friends all help in times like these.
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Re: Brain Cancer

Hi Rarsie - welcome to the group that none of us signed up for ! That being said at times this forum has been my sanity. My husband has been battling his GBM 4 for 2 years this month - he too talks about being around for the next 20, he is 49 years old. I go to every medical appt with him and often have a list of questions I'm not afraid to ask. We are lucky in that when David was strong enough he returned to work in a somewhat limited capacity & I truly believe this often gives him a reason to get going each day. We gave had recurrence of tumour & had stereotactic radiation while we are continuing towards our 18th dose of temodal. This our oncologists suggests will be our last dose this month as his body needs the rest - then another scan in May. We seem to live our life in 12 week cycles between MRIs. It is hard of that there is no doubt and I personally often hate every moment but then tomorrow is another day. It's either us planning our lives where we can or letting the cancer call the shots - not while I can help it ! We are even away on holidays at the moment with our boys - making good memories is a way I look at it . Back to the oncologist on the 20th which is back to reality - even though we have the most aggressive of brain tumours (I say we because we are all effected) in some ways we have been so fortunate with what we have been able to achieve in the last 2 years. I am the organizer in the family & that's what I keep doing - just to keep us going & to have something to look forward too. I do understand though that this won't last forever - sometimes I would like to know how long we have though. Plz stay in touch - vent, get angree, ask questions - anything that feels right - you wont be judged here. Nite
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