Help with my mother's Cholangiocarcinoma

ISRanderia
New Member

Help with my mother's Cholangiocarcinoma

I am posting on behalf of my mother. She is 63 years old and was diagnosed with Cholangiocarcinoma (Bile Duct Cancer) 20 months back. When we detected it, the cancer had already spread a lot. She underwent whipples surgery, followed by 6 cycles of Gemcitabine + Capecitabine. Then another 15 rounds of radiation. We thought that would be it but the cancer spread. So we did 6 cycles of Gemcitabine + Cisplatin + Durvalumab (immunotherapy) at first the results were good but the last scan showed the cancer has spread again. I am running out of options for her treatment, I am going to do the Dendritic Cell Vaccine for here, the first vial comes next week. I know it's results are mixed but at least it's some treatment with minimal side effects. Also since I live in India, we are planning to do some Tibetan herbal medicine, again not sure if it works. I am writing this post since, I am at a dead end, is there any other for of treatment i could pursue, maybe something i missed, since it's not available in India. Read about Ivermectin and Fenbendazole but that I am unsure off, since there doesn't seem to be a proper regime for it, or at least i haven't come across any. I am reaching out to whoever sees this or can guide me further as to what i can do in her case, though I know the possibility of her survival beyond the next 8 months is bleak, but if there is a medication or treatment I am missing I don't mind pursuing it. Thanks in advance .

P.S. TP53 mutation and HER2 negative

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Anonymous
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Re: Help with my mother's Cholangiocarcinoma

Hi @ISRanderia , 

Welcome to the Online Community - I am so glad you found us and felt comfortable enough to share what you and your family are navigating at this time. I can see the depth of love and concern you have for your mother who has undergone considerable treatment over the last 20 months. You both must be feeling the weight of this as you continue to gain as much information as you can around other treatment options for her. How are you right now?  

I'm not sure if you have been able to explore some of the resources on our website as yet, however, you can access them here if you might be interested. We also have a community here to support you as your mother continues her treatment so please do keep us posted on how things are going. I'm also curious about whether both you and your Mother are accessing emotional or psychological support during this time? Having space to explore and process difficult emotions that surface on this journey can be really important for some. 

I do hope to see you online again soon. 

Take care and thinking of you and your mother.

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