wow it's been really hard to get back to you, my login was incorrect so I tried calling cancer connections and they were going to help me put we got cut off, then they changed the website and when I tried to find your message I couldn't, all sorts of stuff got in the way.
Anyway finally I can respond to your message.
My husband was 59 when diagnosed, also very healthy and it was picked up in a blood test he had for going on a cruise. Lucky we are told, unlucky that he has it though.
he has been in one trial with Daratumabab (don't think that is spelt right) and that reduced his levels and they have stayed down since.
it is a waiting game as you would know, thankfully he has a great specialist and she does lots of blood tests (trial requires it but she said she will continue) and she rings with results so he is not waiting until his next appointment.
what you said really hit home though so, we have booked a holiday to Bali in feb for our 40th wedding anniversary and also later in the year another trip. Wanting to do things while we can.
we moved to the beach a few months ago as well as it was our long term goal which we decided to bring forward. Also our daughter, husband and 5 kids moved from Qld back to adelaide to be close so, a blessing that we now have all 7 grandkids and both our children close by.
some days I forget that he has this cancer and other times I feel devastated that I may have to live with out my best friend. I know I need to think about now but, it's hard not to think about the future and what it will bring.
I am sorry to hear of your situation, it's crap and totally unfair. I would like to believe that it's great that you have lived longer than they expected but, I wish you didn't have this cancer at all and that your life was great.
Thank you so much for writing to me and please write again.
Hi Caryn, my partner (41) has been battling multiple myeloma since 2013. He went into remission for a couple of months but the last 2 years has been a constant battle to get a chemo treatment that will keep it at bay. He is about to start on the last chemo treatment they have available at the moment having exhausted the other options for now.
We've experienced all the ups and downs of the various treatments. Like you say some days you wouldn't know he was sick and other days he's barely out of bed. You never know which person you'll have with you on that day. As the person caring it is tough not being able to make any firm plans based on the day. If a treatment is working and having effect though this does improve so these are the times to make the most of if possible.
I'm also in Adelaide so if you ever need to or want to talk please let me know.
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