Myeloma - stem cell and chemo treatment support needed
Hi all,
I hope somebody can help me on behalf of my friend who resides in country WA. She would like to chat one-on-one with somebody who has had intenisve chemo and/or stem cell in the treatment of myeloma.
Either face-to-face or via video link. The treatment is scheduled to start during early January and she'd really like to learn from others' experiences.
Re: Myeloma - stem cell and chemo treatment support needed
I would like to be able to help but I live in Qld. (Logan City) & don't know anything about how to do a video link!
I have had high dose chemo & auto stem cell t/plant in mid 2010 & since then have been terrific with just a small amount of maintenance medication, my paraprotein level was about 50 when we started treatment & has been at less than 1 now for a few months.
When I was having the iv chemo & stem cell (after oral chemo) I swore I wouldn't go through it again but since having the benefits I would do it all again tomorrow if needed! But as always everyone is different with side affects etc.
I know that's not really the "support" you want but the main thing is - JUST GO FOR IT GIRL
Rosco
Re: Myeloma - stem cell and chemo treatment support needed
I live in Queensland and am just starting the stem cell transplant process. Have just had chemo and doing the mobilisation injections ready for stem cell harvest next week. I can't tell your friend what it is like yet, but maybe we can correspond if she is going through it at the same time as me.