Primary Central Nervous System Lymphoma large diffused B cell NHL

[Tash77]

Wanting to hear stories both good and bad form people who have immunocompromised PCNSL large diffuse B cell non Hodgkin's Lymphoma. My son is 18 and was diagnosed with PCNSL Large Diffuse B Cell Lymphoma. He had a kidney transplant at age 2 and this cancer is a direct result of long term immunosuppression. I'm interested in hearing from others who have been in a similar immunocompromised situations. Thanks

[LimeGreen_14]

Hi, I had Primary Bone Diffuse Large B-Cell Lymphoma (NHL) when i was 21. They didnt say anything about immunosuppression in my case except while on chemo. Treatment was R-CHOP chemo and radiotherapy. Your welcome to ask any questions about my experience.

[little_stitcher]

Hi Tash, my husband was diagnosed with Follicular Lymphoma in 2011. He had long term immunosuppression before then, for eczema, but at that stage his Oncologist was unwilling to draw a direct causal link. My husband had 6 months of chemotherapy (Bendemustine and Retuxamab, he was part of the BRIGHT study), and is now doing really well (He's going to cycle up Mount Baw Baw tomorrow- for fun?!!?!!) Good luck to you and your son- let us know how he goes. This is a great place to come for support, venting and asking questions. love and hugs, Emily