This starts with a squamous cell carcinoma cut from my back. Some time later the same cancer grows in my left toncil. I am waiting for 2 more surgeries one to get nodes in my neck the other to get what was not taken by the first surgery.
My question is about the information I get from the doctors. I get a very strong feeling that I am only getting the PG version and being told only what they think I need to know. Even though I have said this to them. Dose anyone else feel that this is happening to them.
They don’t seam to make a connection between the cancer on my back and the tonsil cancer. In fact the doctor said my back was basil not squamous although I have a report saying 7mm 6mm squamous the Doctor who took it only took 2mm in depth. On my pet scan the glow is rather large but they say possibly a small spot. In all from my first visit to an ENT specialist to my next 2 operations will be less than 40 day. Yet they saying don’t worry . Am I over thinking this.
Thank you for your reply.
Thats just it the more I read the more I think they are not giving me all the information.
All I have so far is the name. The staging appointment was huge for me, I guess for us all. But I didn’t get a stage. They didn’t make a connection between the things going on that I have linked easily by reading. There is a formular I found they use to know what a safe margin is .02mm is not enough it should have been 5mm. Then they didn’t get the second time right either. I don’t think they are giving me all the information because they have not things right. My issue now is I am stuck with a team I don’t have much faith in.
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