I had mastectomy a week ago. So many things have gone wrong. They lost the biopsy report. A 'clear' report was sent to my GP, then another saying I had DCIS in my right breast. Then I was booked to have a lumpectomy, but then the report was found, showing that I needed a mastectomy instead, but theatre was not informed until I told them of the upgrade. I was rushed into theatre within half a hour of getting to the hospital. I was told there was no bed for me to stay overnight and that if I wanted to go ahead with the op, I would have to be tranferred to the local hospital afterwards. A bed was found for me eventually and I was sent home the next day. Although painkillers were written up for me by the anaesthetist, I had to ask for them, because nursing staff forgot. I got home and within a day I had a reaction to the painkillers. To get others I had to go to my local Hospital, who directed me to the wrong surgery which was closed. Finally I was given some pain relief, after another trip to the hospital and to the correct surgery. This all took from 2am until 9.30am on a saturday. I was at home with a drain in. It needed changing so I had to go to the local hospital again. The nurses there were not familiar with the drain set-up, and sent me home with the tube still clamped and the drain rate regulator turned off. I had to fix it myself. What else can go wrong? There have been so many seemingly small things that I dread going to see the surgeon next week to get the results of the pathology tests. I cry at the drop of a hat these days, and all the 'contact' numbers given to me to provide help and support have turned out to be recorded messages, not real people.
I am so angry, and feel so isolated.
