German facing treatment of nodular lymphocyte predominant Hodgkin's lymphoma away from home
I am 30 years old, German and here on a long stay working visa. I have recently been diagnosed with nodular lymphocyte predominant Hodgkin's lymphoma (a very rare form of Hodgkin's lymphoma) and am probably in stage III (the staging is not completed yet). I have decided to stay in Australia for treatment although I know that it will be a tough time. I am trying to establish a support network through my friends, flatmates and my boss' family. I will probably start chemotherapy at the Kinghorn Cancer Centre very soon. I am still not sure whether I should choose the ABVD treatment or escalated BEACOPP. In general, I'd be happy to meet people (either online or maybe even in person) who are either survivors or are facing the same fears and situation as me. I try to think postitively and keep calm although I am also very scared because I do not know what to expect. Is there anyone in my age range?
Re: German facing treatment of nodular lymphocyte ...
Hi Lars, I'm in a slightly different situation from you (my 42 year old husband is in remission from non-Hodgkin's lymphoma.) but thought I'd say hi. We found The Warwick Foundation to be a great source of support through his treatment and afterward. They are a charity devoted to people aged 25-40 who have cancer. They have a peer support program called "Mates in My Shoes", which aims to match up people with similar demographics and similar cancers, so they can support each other. The website is "www.thewarwickfoundation.org" if you want to have a look (They're based in Melbourne, but operate all over Australia). This website is also a great resource for support and information.
Good luck with everything! I imagine Hodgkin's and non-Hodgkin's lymphomas are fairly different, so I don't know if my experiences will aid you at all; but I can tell you that my husband has been in remission for nearly 2 years now, and we're currently having a 2 month overseas holiday, which would have been unimaginable 18 months ago. Take things day by day (such a cliche, but still so true), and one day soon you'll look back and be amazed at how far you've come.
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