I have just been diagnosed with Multiple Myeloma. I have read a lot about this as I have never heard of it before. Scary stuff. If there is anyone out there going on the same journey as me, or has already travelled this road I would love to chat to them. I have waiting on test results to determine what stage I am at, but given I have a fractured lower vertebrae (ouch!!!) have jad blood clots and other problems I guess I am on Stage 2.
Hi Chalky, I was diagnosed with Myeloma 4 years ago and have just started readiation treatment for the pain from a tumour on my spine. It is excruciating and have to get pain under control before i start on the chemo road. However, I have had hyerpercalcemia, kidney failure, 2 bouts of pneumonia from the Myeloma and was told because I refused chemo up front that it is like putting out spot fires but it will develop into a bushfire eventually, if you can understand that analagy. Guess I am there now! Have had two lots of Zometa infusions and have an immunoglobulin infusion once a month which helps with infection due to suppressed immune system, hang in there, the waiting is awful I know. And feel free to chat if you would like.
Cancer Council NSW would like to acknowledge the traditional custodians of the land on which we live and work.We would also like to pay respect to elders past and present and extend that respect to all other Aboriginal people.