Hey Kilroy, sorry to hear about the confusion with your diagnosis, it must be really stressful. I’ve had similar conversations in that I had no markers, no symptoms, cysts were benign, it was only after a Lletz procedure where they checked my uterus they found the cancer. Even now, I’m a prelim diagnosis of stage 2 endometrial cancer but not formally staged. My CT scan shows a lesion on my spine and lymph node in pelvis affected, and formal staging won’t come until 2 weeks after surgery. It’s confusing, stressful, frustrating, but mostly scary. The only advice I have is to call your specialist and say ‘ I’m scared, I need some clarity so I can make plans and mentally prepare’. I get the feeling these specialists do this stuff all the time and sometimes forget that we mere humans don’t have the background medical knowledge to know what warrants concern or not, and so we understandly get worried. We’re all here if you need to chat, it’s a beautifully supportive community xx wishing you clarity and strength on your journey, Claire
