Hello
A month ago I was told I had a spiculated lesion on my upper right lung picked up randomly on a CT scan. After this, I was sent for another CT scan & a PET scan. Both lighting up that there was a nodule/lesion that looked like cancer.
I was sent to Fiona Stanley (WA) to have a combine EBUS (Bronchoscopy) of my right lung. I was told I have some emphysema as well in this lung. The following results were:
EBUS FNA lymph node x 3 - negative for malignancy (cytopathology report)
Right upper lobe nodule brushing - negative for malignancy
Right upper lobe nodule cryobiopsy - suggests poorly formed non-necrotising granulomas.
This is another language to me! So I saw my Respiratory specialist - he was not happy. He said - the nodule looks malignant and the EBUS are not accurate generally.
He is taking my results to a meeting on Wednesday at the hospital to decide what to do with the original nodule that was noted.
He has told me that regardless, I need to have my right upper lobe removed. This way they can accurately test/biopsy the odd nodule. He said I would be in hospital for a week. I was also told many people have part of their lung removed and live a healthy normal life. So essentially I have to have part of my lung removed, regardless if it is malignant or not.
Im 64, my respiratory test said Im great with breathing etc. I must decide to have my upper right lung removed. The consequences may be that if I wait, and it is cancer, that it may spread to other parts of my body.
This is a huge decision. I am so confused. I asked for another Biopsy, but was told it may probably not give better results.
Is this normal????? Please help me understand this.
